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After watching the documentary “A World Without Down Syndrome,” 21-year-old Charlotte Helene Fien, who has Down syndrome and autism, wrote a speech about her right to life that she would later read in front of the United Nations. “In the 1930s and 1940s, the Nazis decided to get rid of all disabled people,” she said. “More than 200,000 disabled people were murdered, including many children with Down syndrome. Today the same thing is happening. A test that checks for Down syndrome is being used to kill all babies with Down syndrome. In Iceland, Denmark, and China, not a single baby with Down syndrome has been born for seven years. Seven years! The goal is to eradicate Down syndrome in the future. This makes me angry and very sad.” While babies are still sometimes born with Down syndrome in China, these babies are often neglected, abandoned, left to die, or put in an orphanage by their parents. A British OB-GYN, Dr. Peter McParland, has confirmed that no babies with Down syndrome have been born in Iceland since 2012 and that 90% of these babies are aborted in Britain. Reports show that Denmark is following Iceland’s example, aborting 95-98% of babies with Down syndrome, with the goal of being “Down syndrome free” by 2030. Fien went on to say that while she had Down syndrome, she is not suffering, she is not ill, and none of her friends with Down syndrome is suffering, either. They go to the pub, have boyfriends, and plan for the future. “We just have an extra chromosome,” she said. “We are still human beings. We are human beings.” She asks people not to feel sorry for her and says she loves her life. She loves to play golf and wants to teach children to play golf. She travels independently to other countries and doesn’t let Down syndrome hold her back. “Please do not try to kill us all off,” she asks. “Do not allow this test. If you do allow it, you are no better than the Nazis[.] I have a right to live, and so do other people like me.” Doctors told Fien’s parents she wouldn’t walk before age four, but Fien began walking at 15 months. They said she would be in diapers until she was nine, but Fien was out of them earlier than her brothers, who don’t have Down syndrome. “Parents need to know that the possibilities are limitless for our kids,” her mother told Bright Vibes. “I was told Charlie would never speak one language properly. Well she speaks, reads and writes in two.” According to Bright Vibes, which shared a video of Fien on Facebook, Fien received a five-minute standing ovation for her speech, which marked World Down Syndrome Day 2017.
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Ožujak je mjesec u kojem se obilježava Međunarodni dan osoba s Down sindromom (World Down Syndrome Day). Datum 21. ožujka simbolizira 3 reprodukcije 21. kromosoma što je glavno genetsko obilježje osoba s Down sindromom. U zadnjih deset godina napravljen je pomak u obrazovanju djece s Downovim sindromom. Prije je bila rijetkost naći dijete s Downovim sindromom u redovnoj školi, no danas sve više djece je zahvaljujući ranoj intervenciji dobilo mogućnost učiti sa svojim vršnjacima u redovnom razredu po prilagođenom programu i uz pomoćnika u nastavi. Ovaj oblik školovanja se pokazao i u svijetu daleko najboljim. Dijete s Downovim sindromom dobiva mogućnost učenja, slušanja i napredovanja ne samo u socijalnim vještinama nego i u intelektualnom napretku. Djeca s Downovim sindromom su jako vrijedna, uporna i mogu puno više naučiti, spoznati nego što se mislilo i što se u nekim knjigama i danas može naći. Povećanim brojem djece u redovnim školama bilo kroz potpunu integraciju ili djelomičnu djeca/mladi s Downovim sindromom idu i u srednje škole, najčešće strukovne škole. Što konkretno možete napraviti? Ako želite pomoći onda idemo zajedno mijenjati svijet. Najbolje se svijet mijenja ako su naša djeca integrirana od malih nogu. Ako u vrtiću imate dijete s Downovim sindromom, druga djeca u vrtiću će ga prihvatiti, polako će ga prihvatiti i roditelji te druge djece. Ako imate dijete s Downovim sindromom u redovnoj školi, prihvatit će ga druga djeca u razredu, prihvatit će ga i roditelji te djece. Djeca u razredu će sigurno biti bolja i izrastat će u bolje ljude jer će svaki dan vidjeti što je to upornost, što je to trud, što je to boriti se sa svojim teškoćama, a biti raspoložen, nasmijan, spreman za učenje, za novo. A ta djeca će danas sutra biti ljudi koji će imati svoju djecu, koji će raditi, neki od njih će imati prilike učiti nove naraštaje, možda će netko učiti neko novo dijete s teškoćama, netko će imati prilike predlagati i mijenjati zakone, netko će zapošljavati ili imati prilike poticati zapošljavanje osoba s Downovim sindromom, a netko će se možda odlučiti posvojiti dijete s Downovim sindromom. Važno je da i kroz kampanje i kroz promjene koje smo naveli prvo gledamo da osobe s Downovim sindromom imaju iste potrebe kao i svatko od nas bio dijete, bio mlada ili odrasla osoba. Iste su socijalne i emotivne potrebe, iste su potrebe za punim i ispunjenim životom. Oni žele biti uključeni u zajednicu u kojoj žive i naravno žele biti korisni građani, a na nama je da im to i osiguramo i omogućimo. Granice su puno puta u nama, a ne u njima. Kao jedan od zadataka imamo i osvještavanje javnosti o svim poteškoćama i preprekama s kojima se susreću osobe Down sindromom kako bi mogle ostvariti svoje potencijale-mogućnost redovnog polaska u predškolske i školske ustanove, teškoće kod zapošljavanja, ostvarivanja prava na samostalan život,… Danijela Raič, bacc.occupational th.