http___www.jabuka.tv_dan-sarenih-carapa-down-sindrom-nije-bolest__1.xml
1.1 2.1 3.1 3.2 3.3 3.4 4.1 5.1 5.2 5.3 5.4 6.1 7.1 7.2 7.3 8.1 8.2 8.3 9.1 10.1 10.2 10.3 10.4 11.1 12.1 12.2 13.1 14.1 15.1 15.2 15.3 16.1 17.1 18.1 18.2
People First Language This information can be a helpful resource for media, writers, and for general use… The words we use have the power to help or hurt. It’s important that people who support individuals with Down syndrome use People First Language at all times. People with Down syndrome have the same rights as everyone else and should be treated with respect. Remember to use People First Language in all your interactions to convey respect and to model by example. Spelling The correct spelling is Down syndrome. There is no apostrophe ‘s’ following Down. Dr. John Langdon Down provided the first formal description of the syndrome and therefore no possessive is used. Also, the ‘s’ in syndrome in not capitalized. A Developmental Disability Down syndrome is a chromosomal disorder that is present at conception. Using the term ‘birth defect’ or ‘disease’ in relation to Down syndrome is incorrect. There is no known cure for Down syndrome so these terms are inaccurate. People with Down syndrome usually experience mild to moderate physical and intellectual delays. When referring to a person with Down syndrome, the terms mental retardation and mongoloid are considered outdated, offensive and should be avoided. The best reference is ‘developmentally delayed’ (for children) and ‘developmentally disabled’ (for adults). People First Language Individuals with Down syndrome are people first. The emphasis should be on the individual, not the disability. For example: a baby, child or adult with Down syndrome, not ‘Down syndrome child’ or ‘Downs’ baby’. If mentioning Down syndrome is not relevant to the conversation, why even bring it up at all? Generalizations Avoid generalizing people with Down syndrome as ‘always loving’, ‘always smiling’, or ‘perpetually happy’. People with Down syndrome are not all alike. The diversity of abilities and characteristics among individuals with Down syndrome can be best described as the same for the general population. Judgment Please avoid judgmental terminology. A person with Down syndrome does not “suffer from”, and is not “a victim of” or “afflicted with” Down syndrome. Down syndrome is not a disease and these references only diminish a person’s dignity. Alternate suggestions for describing the syndrome include “living with Down syndrome” or has a medical condition known as Down syndrome. Comparing to Others Realize that parents of children with Down syndrome consider them to be ‘normal’ kids. Comparing them to ‘normal’ kids implies that a child with Down syndrome is something less than normal.
1.1 2.1 2.2 3.1 3.2 3.3 3.4 3.5 4.1 4.2 4.3 4.4 4.5 4.6 5.1 6.1 6.2 6.3 7.1
21. ožujka se u cijelom svijetu obilježava kao svjetski dan osoba sa Down sindromom. Downov sindrom nije bolest i nije uzrokovan nečime što netko čini ili ne čini; ponekad se jednostavno dogodi, i događao se kroz povijest, u svim zemljama svijeta. Otprilike jedna od 700 beba diljem svijeta je rođena sa ovim sindromom. Taj sindrom na različite načine pogađa različite ljude i stupnjevi mentalne retardacije, kao i fizičkih ošćećenja mogu biti različiti. Djeci rođenoj sa sindromom Down je možda teže hodati, govoriti ili učiti nove stvari, no to ne znači da nikad neće naučiti te stvari; Mogu ih naučiti, samo će za to trebati više vremena, više prakse i više odlučnosti i potpore, kako bi se postigle stvari koje ostali ljudi uzimaju zdravo za gotovo. Njihova postignuća su tim veća. Ljudi sa sindromom down se mijenjaju, uče i rastu cijeli život. U zapadnim zemljama su velika nastojanaj da se uključe u normalan život, da se zaposle i (u skladu sa svojim mogućnostima) osamostale. U Bosni i Hercegovini, čini se da smo miljama daleko od toga. Ovdje se ljudi sa sindromom down ponekad moraju boriti za osnovna ljudska prava, koja su nam svima ustavom zajamčena. Uostalom, u zemlji u kojoj su nezaposlenost i loša ekonomska situacija glavni problemi, koga briga za neki postotak nekih tamo ljudi koji ionako ne mogu nikako pridonijeti. A mogu. Kad bi barem svi bili malo više otvorena srca i raširenih ruku i kad bi bili spremni češće pokazati im da smo uz njih, i da smo spremni pustiti ih u svoj svijet, svima bi bilo bolje. I nama, i njima, i našoj djeci sutra. Ovaj kratki članak neće nije smješten u rubriku „Zdravlje“ već u rubriku „Obitelj“ jer sindrom down nije bolest, i jer je Obitelj jedno od rijetkih mjesta gdje djeca i ljudi sa sindromom down mogu pronaći bezuvjetnu ljubav , beskrajno strpljenje i iskreno prihvaćanje. I ne zaboravite, današnji dan se, u znak solidarnosti sa osobama sa sindromom down, u cijelom svijetu obilježava kao „dan šarenih čarapa“ (lots of socks day). Obucite i vi svoje dvije. Različite. (www.jabuka.tv)