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Statutes Title I Organisation Article 1 Name The organisation shall be named European Union of the Deaf, hereinafter referred to as ‘EUD’ or ‘Association’, as agreed at the Annual General Assembly Meeting of 10 October 1994. The on 06 March 1985 as the European Community Regional Secretariat (ECRS) established de facto European organisation was reinstated with legal status as an international association with scientific, humanitarian, religious, artistic, or educational purposes on 17 May 1997 in accordance with the Belgian Act from 25 October 1919. It shall be subject to the Belgian Act of 27 June 1921 under which it is entitled to bear the name: international not-for-profit association. Article 2 Internal Rules EUD shall be governed by the present Statutes and subsequent amendments, the appropriate Belgian laws (as referred to in Article 1), and by the Internal Rules of the Association, including its subsequent annexes. Article 3 Duration The Association’s duration is unlimited. Its legal status may be amended at any time in accordance with Article 32 of these Statutes. Its dissolution may only be carried out in accordance with Article 33 of the present Statutes. Article 4 Legal Seat The registered office of the Association is established in Belgium at the following address: Rue de la Loi/Wetstraat 26/15, 1040 Etterbeek. It may be transferred to any other location in Belgium by the decision of the Board, including subsequent approval by the General Assembly in accordance with Articles 13 and 21. Article 5 Purpose Section 1 Mission Statement It is the aim of EUD to represent and promote the interests of Deaf Europeans at European Union level to achieve equality in public and private life for Deaf people all over Europe to ensure they can become full citizens in their own right. Section 2 Aims To protect the human rights of and advance equal opportunities for all deaf people in compliance with the principle of non-discrimination EUD shall act in accordance to the principles contained in international and European treaties, declarations, and/or charters and any other such instruments that respect the dignity of deaf people and promote their equal and full participation in all spheres of society. All these aims shall be carried out according to the principles of transparency and democratic participation. EUD shall – when necessary – use special legal or administrative measures to achieve the aims and objectives as set forth in these Statutes. To fulfil its aims and objectives EUD reserves the right to become a member of relevant European-level or international organisations. It also may sign co-operation agreements with relevant organisations. Co-operation partners cannot at whatever point in time, claim and/or exercise any rights whatsoever on the assets of the Association. EUD has three concrete long-term aims: - Recognition of the right to use an indigenous sign language; - Empowerment through communication and information; and - Equality in education and employment. Section 3 Objectives In furtherance of the abovementioned aims EUD shall have the following objectives, which must be carried out in consultation and co-operation with its members and must be in accordance with existing and subsequent international human rights instruments, following a rights-based approach to disability and deafness: - To encourage active collaboration and exchange of information between member organisations and co-operation partners; - To promote and co-ordinate pan-European activities and events for deaf people and their respective organisations, including training events to strengthen its members to carry out the aims stipulated in these Statutes at national level; - Establish and maintain active co-operation, dialogue, and representation with European and international institutions and organisations, as well as its representatives, including but not limited to the European Union, the Council of Europe, or the United Nations; - Establish and maintain active co-operation with other relevant non-governmental organisations (NGOs) as set out in the Internal Rules (Article 4), as well as the media, trade unions and employers; - Promote and systematically monitor European-level legislative proposals and carry out campaigns to influence policy and practices throughout Europe; - To conduct and commission research and collect data in any area affecting deaf people and provide this – when necessary in co-operation with other organisations – to relevant stakeholders and organisations, including but not limited to the European Union institutions and/or national governments and their agencies, as well as academic and research entities; - To prepare and disseminate position papers, periodic information bulletins and other contributions – either in writing or in sign – may it be online or offline; - To defend the interests of its member organisations and of their members’ organisation when called upon by them to do so at European level and through them also at national level; - To do all such things to further, directly or indirectly, the aims and objectives of the Association. Article 6 Definition The term "Deaf" refers to any person with a hearing loss, particularly those who use sign language as their natural or preferred/first language. National organisations are entitled to use their own preferred definition of Deaf and sign language but should adhere to the WFD/EUD definition. Title II Members Article 7 Membership There shall be five (5) membership categories: (1) full members, (2) affiliated members, (3) associate members, (4) honorary members, and (5) individual members. The rights and obligations of these members shall be set forth in the present Statutes and Internal Rules of the Association. Any reference to ‘member’ or ‘members’ shall refer to all members (full, affiliated, associate, honorary, and individual) collectively, unless otherwise stated. The term ‘member organisation’ or ‘member organisations’ shall refer to full, affiliated, and associate members only, unless otherwise stated. Member organisations shall be legally constituted pursuant to the laws and customs of their country of origin. All members except honorary members shall contribute to an annual membership fee. The rights and obligations of all members shall be set forth in Articles 5 and 6 of the Internal Rules. The membership application procedures shall be set forth in Article 9 of the Association’s Statutes. No member, of whatever category at whatever point in time, can claim and/or exercise any rights whatsoever on the assets of the Association except in a situation where a member has granted a loan to EUD. Article 8 Membership Categories Section 1 Full Members National organisations of Deaf people (‘National Associations of the Deaf’, NADs) active in the Member States of the European Union, with a clear majority of deaf voting members among its membership and with a governing Board with a majority of deaf persons and whose objectives conform to the principles and objectives set forth in Article 5 of the present Statutes are eligible to apply for full membership. In addition, national organisations of deaf people active in the Member States of the European Free Trade Association (EFTA) that meet the above-mentioned criteria are also eligible for admission to the full membership category. Full members shall be informed and consulted on an ongoing basis about the activities of the Association. Full members have complete ownership of the organisation. Full members set and approve the policy directions and the priorities of the Association and contribute to all of its activities on an ongoing basis. Full membership is limited to one (1) national organisation of the deaf in each country. Section 2 Affiliated Members National organisations of deaf people (‘National Associations of the Deaf’, NADs) active in Central and Eastern Europe, which have signed an Accession Treaty with the European Union and/or may be joining the European Union in the future, with a clear majority of deaf voting members among its membership and with a governing Board with a majority of deaf persons and whose objectives conform to the principles and objectives set forth in Article 5 of the present Statutes are eligible to apply for affiliated membership. This category may also apply to non-EU national organisations of deaf people that meet the above-given criteria and that are active in countries that a geographically situated in Europe and that have signed or may sign a Partnership and Cooperation Agreement (PCA) with the European Union. This category may in the future also apply to Member States of the Council of Europe (CoE) after ratification by the General Assembly. Other countries that are not geographically situated in Europe but wish to become affiliated to EUD for political or other reasons require prior approval by the General Assembly. Affiliated members shall be informed and consulted on an ongoing basis about the activities of the Association. Section 3 Associate Members Any European, national, regional, and local organisation, which does not meet the above-given criteria of a national organisation of the deaf, but desires to support the aims of the Association and whose aims and objectives are not in contrast to the aims of the Association as set forth in Article 5 of the present Statutes, may apply to become an associate member, as long as their geographic reach is within Europe. This may include corporate and profit-oriented associations and groupings. Section 4 Honorary Members Honorary membership may be conferred upon any individual, legal or physical that has rendered important and outstanding European and international services to EUD and the European Deaf Community. Section 5 Individual Members Any individual who has shown an interest in the Association’s work and thinks s/he can further the aims and objectives of EUD can apply to be an individual member. Article 9 Membership Application Procedure All applications are subject to approval by the Board and the General Assembly as set forth in the Internal Rules (Article 8). Honorary membership is subject to approval by the General Assembly. Only full members and members of the Board may nominate honorary members. Article 10 Withdrawal, Termination/Exclusion & Suspension Any member may withdraw from EUD at any time without reasons by registered letter containing a notice of resignation. The withdrawal shall come into effect immediately. Providing there is sufficient evidence that existing members do not conform to the principles laid out in Article 5 of the Statutes, and/or Articles 7 the Board can recommend the termination of a membership to the General Assembly. Membership is only terminated if approved by the General Assembly. The Board has the right to suspend membership in accordance with Article 22 of the Statutes and solely if a member is found in violation of Article 5 and/or Article 31 of the Statutes and/or Articles 5, 6 & 7 of the Internal Rules. Any member who, in whatever way and for whatever reason, ceases to be a member of the Association shall have no claim for compensation from the Association and shall have no claim on the Association’s assets. The applicable membership fees shall remain due and payable to the end of the financial year. Re-application may only be granted after two (2) years by recommendation of the Board and subject to approval by the General Assembly and only if there is sufficient evidence that the terms of violation have changed. In all cases set forth in this article the results shall be communicated to all members within 35 days. Title III Organisational Structure & Secretariat A General Article 11 Organisational Structure The organisation consists of the following structural organs: - The General Assembly; and - The Board, which is chaired by the President; The Secretariat and its staff assist the organisation in achieving its long-term goals. Article 12 Secretariat The Secretariat shall be headed by an Executive Director who is directly accountable to the EUD Board. All other staff members report to the Executive Director. B General Assembly Article 13 Composition The General Assembly shall consist of Full Member representatives, which are appointed by the Full Members in accordance with their statutes. The following individuals shall attend the General Assembly and have the right to address the General Assembly but no right to vote: - All Board Members; - EUD Executive Director; - EUD secretariat staff. Representatives from all membership categories have the right to attend the General Assembly but can only address the General Assembly after seeking permission from the President. Member representation must follow Article 5 of the Internal Rules of the Association. EUD co-operation partners and invited guests may attend but have no right to vote. They may only address the General Assembly after seeking permission from the President. Article 14 Powers & Competences The General Assembly shall have the following exclusive competences according to the Statutes and Internal Rules: - Elect the Board (Members: 1 President, 1 Vice-President, 3 Ordinary Board Members); - Review and approve submitted reports on EUD activities; - Take action on submitted financial reports and budgetary matters; - Approve the annual accounts and budgets; - Review and approve the upcoming year’s action programme and give new direction to the EUD; - Mandate the EUD Board and/or Secretariat to apply for project funding for the coming year(s); - Amend and vote on all submitted recommendations, proposals and motions; - Amend the Statutes and Internal Rules of the Association; - Accept and terminate the membership of any Member and expel non-paying Members from EUD in accordance with Article 10 of the Internal Rules; - Appoint and dismiss Board Members; - Change the name or the location of the Association; - Dissolve EUD. Article 15 Annual General Assembly The Annual General Assembly shall take place once a year in a Member State of the European Union at a location mentioned in the formal invitation. It shall follow the countries of the Presidency of the European Union, unless the Full Member in question is unable to host the Assembly. Article 16 Extraordinary General Assembly Extraordinary General Assembly meetings may be called by the President after consultation with all Board Members and the Executive Director or at the request of one-fourth (1/4) of the full members. Article 17 Quorum & Vote The General Assembly holds the highest authority of the Association. A decision can only be made by the General Assembly on items on the previously approved agenda. Only Full Members have voting rights in accordance with Article 5(2) of the Internal Rules of the Association. The quorum shall always comprise more than 50% of those entitled to vote. All decisions shall be considered adopted/ratified/approved by simple majority of the ‘yes’ votes cast (more than 50%) with the exception of amendments to the Statutes/Internal Rules and the dissolution of the Association, which require a two-thirds (more than 2/3) majority. Delegates may vote for any given option or choose to abstain. An abstention counts as a vote. Voting may be by roll call, by show of hands, by electronic vote, or if requested by at least two (2) Full Members, by secret ballot. Voting by proxy is not permitted. Article 18 Invitations & Agenda The invitations and agenda for all General Assembly meetings (annual and extraordinary) must be sent to all members in writing in accordance with Articles 11 and 12 of the Internal Rules. Article 19 Minutes Minutes of every General Assembly meeting are drawn up by a member of the Secretariat or a person indicated by the President at the start of the meeting, and signed by such person and the President. The minutes shall be made available in the Members’ section of the EUD website, where they remain at the disposal of all members. Third parties wishing to consult the minutes must address a request to the General Assembly who shall have full sovereignty in deciding whether to grant the request or not. Article 20 Procedures The procedures on votes and decision-making are set forth in the Internal Rules of the Association. The General Assembly will be chaired by a person appointed by the Board and should not be a Board or staff member. C Board Article 21 Composition The Association’s Board shall consist of five (5) members: one (1) President, one (1) Vice-President, and three (3) ordinary Board Members. All Board members must – at all times – adhere to the principles laid out in Article 5 of the Statutes, as well as the EUD core terms and principles stipulated in Article 7 of the Internal Rules. Article 22 Powers & Competences The Board shall have all competences, which are not exclusively granted to the General Assembly. In particular it shall have the competence to: - Give direction to the EUD secretariat in implementing decisions of the General Assembly and the Board; - Recruit and appoint appropriately qualified person(s) to staff the EUD secretariat; - Take responsibility of the finances of EUD; - Review actions and make decisions between meetings of the General Assembly and implement policies approved by the General Assembly; - Suspend or expel any member organisation in violation of the EUD Statutes, subject to approval by the General Assembly in accordance with Article 10; - Recommend the revision or amendment of the Statutes and Internal Rules subject to approval by the General Assembly in accordance with Article 17 and Article 32; - Review applications for all membership categories in accordance with Article 8 of the Internal Rules of the Association; - Agree on a final agenda for meetings of the General Assembly in consultation with the Full Members. The Board shall not interfere in the internal affairs of any member organisation. Article 23 Procedures The Board shall meet at least four (4) times a year, or as business requires. The procedures on elections, votes, and decision-making are set forth in the Internal Rules of the Association. The Board meeting shall be chaired by the President. If the President is not present, the Vice-President shall chair the meeting. If both are not present, one Board member shall be chosen among the Ordinary Board Members in attendance. Minutes of each Board meeting are drawn up by the Executive Director, a Board Member, or a secretary indicated by the Chair at the start of the meeting, and signed by such person and the President. The minutes shall be made available in the Members’ section of the EUD website, where, except for personal matters, they remain at the disposal of all Full Members. Third parties wishing to consult the minutes must address a request to the General Assembly which shall have full sovereignty in deciding whether to grant the request or not. Article 24 President Section 1 Powers & Competences The President shall have the power to mandate his/her tasks to other Board Members and/or the Secretariat. The President is a member of the EUD Board and partners with the Executive Director and the Secretariat in achieving EUD’s vision. He/She provides leadership to the Board, which sets the strategy and to whom the Executive Director is accountable. Section 2 Responsibilities The President shall represent EUD in external policy and political matters. Only in his/her absence can this responsibility be taken by the Vice-President or mandated to any other Board Member or the Executive Director. For a clearly defined task the President may delegate his/her right to externally represent EUD to another Board Member or to the EUD Secretariat. The President shall, however, be responsible for any decision or action taken by the representative on his/her behalf. The President shall not take any public decision on behalf of EUD without prior consultation with the Board. The President shall manage Board meetings after developing the agenda with the Executive Director. He/She monitors the financial planning and the financial reports and discusses issues confronting EUD with the Executive Director. He/She encourages the Board’s role in strategic planning. The President shall formally evaluate performance of the Executive Director and the effectiveness of the other Board Members in accordance with Human Resource management procedures. He/She shall evaluate the annual performance of EUD in achieving its aims and objectives. The President shall perform other responsibilities as assigned by the Board. Article 25 Vice-President Section 1 Powers & Competences The Vice-President is a member of the EUD Board. He/She performs the EUD President’s responsibilities when the EUD President is not available or has specifically mandated him/her to do so. Section 2 Responsibilities The Vice-President reports to the EUD President and works closely with the EUD President and other EUD staff. The Vice-President performs all other responsibilities as assigned by the EUD Board. Article 26 Board Members Section 1 Powers & Competences The President and the Vice-President, as well as Ordinary Board Members, shall have the powers conferred upon them in the present Statutes and the Internal Rules of the Association. They report to the General Assembly. Section 2 Responsibilities All Board Members, including the President and the Vice-President shall attend all EUD Board meetings. In case of non-attendance, Article 13(3) of the Internal Rules must be applied. EUD Board Members shall volunteer for and willingly accept assignments and complete them thoroughly and on time. They stay informed about EUD matters, prepare themselves for meetings and review and comment on minutes, reports, and other documentation, as required. Board Members actively participate in EUD’s annual evaluation and strategic efforts. D Secretariat & Executive Director Article 27 Secretariat Section 1 Powers & Competences The Secretariat shall be based at the registered office of the Association. The Secretariat shall have a representation function for the tasks with which it is charged. All efforts should be made to retain a gender and geographical balance. A pro-active approach should be taken with regard to the recruitment of deaf sign language users. Section 1 Responsibilities It shall be the Secretariat’s role to implement the broad policy decisions made by the governing bodies. In accordance with Article 22 it shall be responsible for the recruitment procedure. Article 28 Executive Director Section 1 Powers & Competences The Executive Director shall report directly to the Board and shall co-ordinate the work of the Secretariat. In its daily work it shall represent EUD externally in compliance with the provisions set out in Article 24(2). Section 2 Responsibilities The Executive Director shall be responsible for the following tasks and shall have the mandate to delegate any of those to other staff members: - Management of the EUD secretariat and staff; - Networking with European Institutions and relevant European NGOs; - Contact person for European Institution representatives and relevant European NGOs and co-operation partners; - Main contact for communication with members; - Attending relevant national and European events or meetings when mandated by the President and/or invited by members; - Promoting the Deaf Community in all EUD member countries; - Management of project proposals/reports/applications/finances by following the relevant project calls in the European institutions; - Manage the finances and control the costs in co-operation with the Board; - Prepare meetings in co-operation with the Board, including all documentation and organisation. In all of his/her tasks the Executive Director shall support the Board and the General Assembly in achieving the aims and objectives set forth in Article 5. Title IV External Representation Article 29 Representation to Third Parties The Association shall be validly represented to third parties and with regard to all deeds by the President or the Vice-President, each acting individually. All legal acts and proceedings that bind the Association shall, in the absence of a special proxy, be signed by the President or the Vice-President, each acting individually. Within the framework of daily management, the Association shall be validly represented to third parties and with regard to all deeds by the Executive Director. None of the aforementioned persons must justify his/her powers vis-à-vis third parties. The Association shall also be validly represented for one or more specific undertaking(s), within the framework of his/her mandate, by a proxy holder duly mandated by the Board, or within the framework of the daily management, by the Executive Director. Title V Finances Article 30 Financial Year The financial year shall follow the calendar year, running from 1 January to 31 December. The General Assembly shall have the power to change the dates of the financial year. Article 31 Sources of Income The sources of income shall be: a) Membership fees; b) Subsidies, grants, gifts, contributions, donations, legacies, and other provisions of wills and testaments given to support either the general aims or a specific purpose of EUD, may it be public or private. The Board may, in exceptional circumstances, obtain bank loans. Title VI Amendment & Dissolution Article 32 Amendment The General Assembly shall have the power to ratify and review proposed amendments to the present Statutes and Internal Rules. Proposals for amendments may emanate from the Board or from at least one-fifth (1/5) of the Full Members. The draft of the amended Statutes and/or Internal Rules must be added to the agenda and sent to all Full Members two (2) months prior to the start of the General Assembly. Changes can only be adopted by the General Assembly in accordance with Article 17. The amendments to the Statutes and/or Internal Rules must be presented to the relevant authorities and must be published in the annexes of the Belgian Official Journal, in accordance with the applicable legislation set forth in Article 1. Article 33 Dissolution The General Assembly shall have the power to dissolute the Association. Proposals for dissolution may emanate from the Board or from at least one-fifth (1/5) of the Full Members. The dissolution of the Association must be added to the agenda of a General Assembly meeting and voting shall be in accordance with Article 17. In the event of dissolution, the General Assembly shall appoint two liquidators and determine their powers. The General Assembly shall also decide on the assets of the organisation, which must be awarded to another named not-for-profit organisation, having similar or related aims to the Association. Title VII Communication Article 34 Official Language The language for all official documentation shall be Dutch, when required by Belgian law. Article 35 Working Languages The working languages of the Association shall be written English and International Sign. Article 36 General Assembly & EUD Events All EUD events and General Assembly meetings shall be conducted in International Sign. Every effort will be made to provide national sign language interpretation, taking into account financial and structural constraints. Where the event is also aimed at a wider hearing audience, spoken language interpretation shall be made available. A pro-active approach to the recruitment of deaf interpreters shall be made. Title VII Final Provisions Article 37 Applicable Law and Legal Texts The Dutch original text shall be the only legally binding text. The Association shall be subject to the laws set forth in Article 1 of the present Statutes. Any aspects that have not been dealt with under the present Statutes shall also be subject to the laws set forth in Article 1. Article 38 Interpretation of Statutes The Board shall have the competence to arbitrate should any dispute arise in relation to the interpretation of the present Statutes and Internal Rules. The Internal Rules shall be subordinate to the Statutes, as set forth in Article 1 of the Internal Rules of the Association.
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Temeljem članka 11. Zakona o udrugama ( N.N. br.88/01 i 11/02 ), Skupština Udruge distrofičara Krapina usvojila je na Osnivačkoj skupštini održanoj 13. 04. 2007. godine usvojila je S T A T U T UDRUGE DISTROFIČARA KRAPINA I OSNOVNE ODREDBE Članak 1. Ovim se Statutom uređuju odredbe o nazivu, sjedištu i području djelovanja Udruge distrofičara Krapina (u daljnjem tekstu Udruge), o zastupanju, o ciljevima i djelatnostima kojima se ostvaruju ciljevi, o ostvarivanju javnosti rada Udruge, o članstvu, o pravima i obvezama članova, o upravljanju Udrugom, o tijelima Udruge, njihovu sastavu, ovlastima, načinu odlučivanja, uvjetima i načinu izbora i trajanju mandata, o stegovnom postupku, o udruživanju i ustrojstvenim oblicima Udruge, o imovini Udruge, načinu stjecanja imovine i raspolaganju s mogućom dobiti, o prestanku Udruge, te postupku s imovinom u slučaju prestanka Udruge. Članak 2. Udruga nosi naziv: Udruga distrofičara Krapina. Skraćeni naziv udruge glasi: UDK Sjedište udruge je u Krapini, ulica Magistratska 12. Engleski naziv Udruge je: Muscular dystrophy society of Krapina Udruga djeluje na području Krapinsko-zagorske županije. Prema Registru, djelatnost Udruge je sa socijalno – humanitarnim ciljevima. Članak 3. Udruga distrofičara Krapina je neprofitna, nestranačka i nevladina udruga koja djeluje u korist javnog dobra i kao pravna osoba registrirana pri Uredu za opću upravu Krapinsko-zagorske županije. Oblik je dobrovoljnog okupljanja i organiziranja aktivnosti osoba s invaliditetom (osoba oboljelih od mišićne distrofije i srodnih neuromuskularnih bolesti) radi zaštite i promicanja zajedničkih zdravstvenih, socijalnih, humanitarnih i drugih interesa i ciljeva, senzibiliziranju javnosti za specifične potrebe svojih članova i mogućnosti njihovog zadovoljenja bez namjere stjecanja dobiti. Članak 4. Udruga ima pečat okruglog oblika promjera 25mm. U vanjskom krugu pečata stoji ispis Udruga distrofičara Krapina, a u sredini međunarodni znak pristupačnosti. Udruga ima i pečat pravokutnog oblika dužine 60 mm, širine 20 mm, unutar kojeg je ispisan puni naziv, sjedište i broj telefona-faxa Udruge. Članak 5. Udrugu zastupa i predstavlja predsjednik udruge. U slučaju odsutnosti predsjednika , Udrugu zastupa i predstavlja dopredsjednik ili osoba po ovlaštenju predsjednika Udruge ili Upravnog odbora. II CILJEVI I DJELATNOST UDRUGE Članak 6. Temeljni ciljevi Udruge su aktivno sudjelovanje u neposrednoj primjeni i razvoju socijalnog modela skrbi za svoje članove i njihove obitelji, sukladno odrednicama Nacionalne strategije - da kao subjekti u izjednačenim uvjetima i mogućnostima - budu tretirane tako da se u svakodnevnom životu i radu uvažavaju njihove specifične potrebe, poštuje njihovo dostojanstvo i u cijelosti njihova ljudska prava. Poseban cilj udruge je stvaranje partnerskih odnosa s lokalnom upravom i samoupravom radi ostvarivanja materijalnih, prostornih i financijskih preduvjeta za rad i neovisno djelovanje Udruge. Članak 7. Temeljne ciljeve udruga ostvaruje obavljajući sljedeće djelatnosti: - inicira, planira i realizira programe koji promiču socijalnu, medicinsku, edukativnu i profesionalnu rehabilitaciju, te zapošljavanje članova, - sakuplja i širi informacije o životnim prilikama, te inicira sveobuhvatno istraživanje o svim aspektima neprilagođene okoline koja izravno utječe na kvalitetu života osoba s invaliditetom, - aktivno sudjeluje u pružanju raznih oblika socijalne pomoći, obavlja prikupljanje i raspodjelu humanitarne pomoći, te daje upute, savjete i preporuke pri rješavanju problema svojih članova, - učlanjuje i vodi evidenciju o članstvu; animira osobe s invaliditetom, njihove srodnike i prijatelje te ugledne javne radnike da se učlanjuju u Udrugu, - aktivno sudjeluje, bilo neposrdno ili posredno putem nacionalnog saveza, u predlaganju novih zakona i propisa o osobama s invaliditetom, inicira i predlaže izmjene i dopune zakonskih i drugih propisa, te pomaže članovima i njihovim obiteljima u ostvarivanju njihovih prava ( moralnih, ljudskih, materijalno- financijskih, obiteljskih ..) - organizira stručne i edukativne, športske i rekreativne aktivnosti za sve članove Udruge, - promiče umjetničko i kreativno izražavanje članova Udruge, te kulturno-zabavne programe, - pomaže moralno, stručno, materijalno ili financijski, inovatore i inicijatore originalnih izuma, ideja i programa na području promicanja kvalitete života osoba s invaliditetom, - u skladu s mogućnostima pomaže članove Udruge u provođenju profesionalne rehabilitacije i zapošljavanja, kod medicinske rehabilitacije, kod uklanjanja građevinsko-urbanističkih barijera, nabavke ili prilagodbe specijalnih pomagala i u drugim opravdanim prigodama, - pruža potporu znanstvenim istraživanjima od interesa za djelovanje Udruge kao i izdavačkoj djelatnosti koja promiče kvalitetu življenja osobama s invaliditetom, - surađuje s lokalnim, gradskim i državnim organima uprave i resornim subjektima koji su profesionalno, stručno pa i osobno vezani za rješavanje problematike osoba s invaliditetom, - obavlja poslove i zadatke koji su u sklopu lokalne uprave, a preneseni u djelokrug rada Udruge ili ih grupa članova (sekcija) udruge postave kao obavezu pred svoju Udrugu radi zadovoljavanja potreba sveukupnog članstva a u iznimnim slučajevima i konkretnog člana; - surađuje sa srodnim udrugama osoba s invaliditetom radi razmjene iskustva, planiranja zajedničkih aktivnosti i organiziranja skupova i susreta za članove, - surađuje s proizvođačima, serviserima i distributerima ortopedskih i drugih pomagala, te specijaliziranim tvrtkama i subjektima spremnim na suradnju, - pomaže sve akcije u gradu i susjednim općinama na uklanjanju građevinsko-urbanističkih barijera te inicira i potiče akcije vezane za izgradnju, adaptaciju, preuređenje i opremanje objekata i ustanova namijenjenih liječenju i rehabilitaciji, zdravstvenom turizmu i odmoru, rekreaciji i športu, smještaju, stanovanju, školovanju i zapošljavanju osoba s invaliditetom, - obavlja službu prijevoza za članove Udruge, koja se regulira posebnim pravilnikom, - obavlja i sve druge poslove koji su od interesa za Udrugu i njezine članove, te za sve osobe s invaliditetom Članak 8. Djelatnosti iz članka 7. Statuta, Udruga i njena tijela izvršavaju, razrađuju i konkretiziraju sukladno s programskom orijentacijom za mandatno razdoblje, godišnjim i višegodišnjim planovima i programima, kao i drugim planskim dokumentima. III JAVNOST RADA UDRUGE Članak 9. Rad Udruge je javan. Javnost rada Udruga ostvaruje na načine utvrđene ovim Statuom i pravodobnim izvješćivanjem članstva o radu Udruge o svim značajnim događajima, pisanim izvješćima, informativnim glasilima, te putem sredstva javnog priopćavanja. IV ČLANSTVO Članak 10. Članom Udruge može postati pod jednakim uvjetima svaka osoba bez obzira na rasu, boju, spol, jezik, vjeroispovjest, narodnost, etničku pripadnost, političko i drugo uvjerenje, socijalno podrijetlo, imovinsko stanje, vrstu i uzrok invalidnosti kao i stupanj oštećenja. Članstvo u udruzi može biti: redovno, pridruženo, nominalno i počasno. Redovnim članom Udruge može postati svaki poslovno sposoban državljanin Republike Hrvatske obolio od mišićne distrofije i srodnih neuromuskularnih bolesti. Redovnim članom može postati i roditelj/staratelj malodobnog djeteta oboljelog od mišićne distrofije i srodnih neuromuskularnih bolesti.. Pridruženim članom udruge može postati svaki poslovno sposoban državljanin Republike Hrvatske i pravna osoba sa sjedištem u Republici Hrvatskoj koji stručnim radom, donacijom ili na neki drugi način pomaže rad Udruge i pruža pomoć osobama s invaliditetom bez prava odlučivanja u tijelima Udruge. Nominalni članovi su maloljetne osobe, osobe bez poslovne sposobnosti ili s ograničenom poslovnom sposobnošću, ali bez prava odlučivanja u tijelima udruge. Članak 11. Odluku o primitku u redovno članstvo donosi predsjednik. Odluku o dodjeli statusa pridruženog člana udruge donosi Upravni odbor. Posebnom odlukom Skupština na prijedlog Upravnog odbora može proglasiti počasnim članom zaslužne pojedince ili donatore, koja se izdaje u pisanom obliku. Popis članova udruge vodi se u registru članova i pomoćnim knjigama evidencije. Članak 12. Redovnim članovima udruge izdaje se članska iskaznica. Izgled, sadržaj i način izdavanja članske iskaznice utvrđuje Upravni odbor posebnom odlukom. Članak 13. Prava redovnih članova Udruge jesu: - da biraju i budu birani u organe i tijela Udruge, - da neposredno ili posredno sudjeluju u radu i aktivnostima Udruge, - da traže podršku Udruge za ostvarivanje svojih osnovnih ljudskih prava kao i specifičnih prava i zadovoljavanje specifičnih potreba, - da djeluju na ostvarenju ciljeva zbog kojih je Udruga osnovana, - da budu informirani o djelatnostima Udruge Članak 14. Dužnosti članova jesu: - da sukladno svojim sposobnostima, mogućnostima, interesima, te zajedničkom interesu Udruge, izvršavaju obveze utvrđene ovim Statutom i drugim aktima koje je usvojila ili im je pristupila Udruga, - da aktivno doprinose radu Udruge, - da u svojem neposrednom okruženju promiču interese osoba s invaliditetom i interese Udruge, - da štite ugled i čuvaju imovinu Udruge, - da plaćaju članarinu. Članak 15. Skupština određuje iznos članarine za svaku tekuću godinu. Od obveze plaćanja članarine, mogu biti oslobođeni redovni članovi udruge temeljem podnošenja osobne zamolbe na početku svake godine, ukoliko su socijalno ugroženi, djeca, učenici, studenti i slično. Odluku o oslobađanju redovnih članova od plaćanja članarine donosi Upravni odbor u roku od 30 dana od dana podnošenja zamolbe. Članak 16. Članstvo u udruzi prestaje dragovoljnim istupom, smrću, brisanjem ili isključenjem. Upravni odbor može brisati iz članstva onog člana koji neopravdano dulje vrijeme - a najmanje godinu dana - bez opravdanog razloga ne ispunjava dužnosti redovnih članova Udruge. Upravni će odbor isključiti iz Udruge člana koji nije poštivao odredbe ovog Statuta i koji je grubo narušio ugled Udruge temeljem provedenog stegovnog postupka. Odluka o isključenju iz članstva udruge donosi se većinom glasova članova Upravnog odbora. Odluka o isključenju ili brisanju iz članstva dostavlja se članu pismenim putem uz obrazloženje, a on na istu ima pravo žalbe Skupštini Udruge. Odluka Skupštine Udruge je konačna. UPRAVLJANJE UDRUGOM I TIJELA UDRUGE Članak 17. Udrugom upravljaju članovi neposredno ili preko svojih izabranih zastupnika. Članovi upravljaju Udrugom neposredno osobnim izjašnjavanjima na sjednicama Skupštine Članak 18. Tijela udruge jesu: Skupština - Upravni odbor Predsjednik Nadzorni odbor Članak 19. Skupština je najviše tijelo upravljanja Udrugom. Skupštinu čine svi članovi Udruge. U Skupštinu mogu biti birana do dva člana iz redova aktivista i suradnika različitih pofila stručnosti i zanimanja koji su svojim djelovanjem pridonijeli uspješnom izvršavanju ciljeva i zadataka Udruge. Počasni članovi sudjeluju na Skupštini bez prava odlučivanja. Skupština može biti redovita, izborna ili izvanredna Skupština redovito zasjeda jedanput godišnje, a sjednica Izborne skupštine održava se svake četvrte godine, dok se Izvanredna skupština saziva po potrebi. Članak 20. Sjednice Skupštine saziva Upravni odbor udruge na vlastitu inicijativu. U odluci za sazivanje Skupštine Upravni odbor utvrđuje dnevni red, Poslovnik o radu Skupštine, te dan i mjesto održavanja sjednice. Upravni odbor dužan je sazvati sjednicu Skupštine kada to zatraži najmanje 1/3 članova Skupštine, Nadzorni odbor ili jedan od ustrojbenih oblika Udruge. U svom zahtjevu za sazivanje sjednice Skupštine predlagatelji su obavezni predložiti dnevni red sjednice. Ako Upravni odbor ne sazove sjednicu Skupštine u roku od 15 dana od dana dostave zahtjeva, sazvat će je predlagatelj. Odluka o sazivanju Skupštine treba sadržavati prijedlog dnevnog reda, te mjesto i dan održavanja sjednice. Članak 21. Skupštini predsjedava predsjednik udruge. U slučaju odsutnosti predsjednika Udruge, Skupština će na početku sjednice javnim glasovanjem odrediti osobu koja će predsjedavati sjednicom. O radu sjednice vodi se zapisnik, a potpisuje ga zapisničar, dva supotpisnika i predsjedatelj Skupštine. Članak 22. Skupština može raditi i pravovaljano odlučivati ako joj je nazočna natpolovična većina članova Skupštine. Ako odaziv nije natpolovičan u zakazano vrijeme, početak rada Skupštine odgađa se za pola sata i tada može pravovaljano odlučivati ako je nazočno više od jedne četvrtine članova Skupštine. Članak 23. Zastupnici Skupštine izjašnjavaju se javnim glasovanjem, ukoliko nije Poslovnikom drugačije uređeno ili ne odluče da se glasuje tajno (izbor predsjednika, potpredsjednika, tajnika, članova Upravnog i Nadzornog odbora te Stegovne komisije). Članak 24. Skupština donosi odluke većinom glasova članova. Dvotrećinska suglasnost članova Skupštine potrebna je: - za usvajanje Statuta, odnosno njegovih izmjena i dopuna, - za donošenje odluke o osnivanju ustrojstvenog oblika Udruge, - za davanje ovlaštenja za predstavljanje ustrojstvenog oblika Udruge. Članak 25. Skupština udruge: - donosi Poslovnik o svom radu - donosi i mijenja Statut Udruge - donosi i mijenja program djelatnosti i planove rada - donosi financijski plan - donosi odluku o osnivanju ustrojstvenog oblika Udruge - donosi druge akte i odluke važne za rad Udruge - razmatra i usvaja izvješća o radu i o materijalnom i financijskom poslovanju Udruge - bira i razrješava dužnosti predsjednika Udruge - bira i razrješava članove Upravnog i Nadzornog odbora, - odlučuje o žalbama članova protiv odluka Upravnog odbora - odlučuje o prestanku rada Udruge i raspodjeli njene imovine - obavlja i druge poslove određene zakonima ili Statutom. Članak 26. Predsjednika udruge bira Skupština na mandat od četiri (4) godine na prijedlog Upravnog odbora. Predsjednik udruge ujedno je po funkciji i predsjednik Upravnog odbora. Predsjednik zastupa udrugu, pokreće raspravu o određenim pitanjima iz djelokruga rada Skupštine i Upravnog odbora, brine se o upoznavanju javnosti s radom Skupštine i njenih tijela, rukovodi radom Skupštine i Upravnog odbora, potpisuje dokumente koji materijalno obvezuju Udugu, obavlja i druge poslove utvrđene zakonom i ovim Statutom. Predsjednik podnosi izvješće o svom radu Upravnom odboru i Skupštini Udruge. U slučaju odsutnosti ili spriječenosti predsjednika, u svim ga poslovima zamjenjuje dopredsjednik ili član Upravnog odbora kojeg ovlasti predsjednik ili Upravni odbor. Članak 27. Upravni odbor je izvršno i operativno tijelo Skupštine Udruge. Upravni odbor ima pet (5) članova, uključujući predsjednika Udruge. Mandat članova Upravnog odbora traje četiri (4) godine. U Slučaju da za trajanje mandata pojedini članovi Upravnog odbora budu spriječeni sudjelovati u njegovu radu ili zbog bilo kojeg razloga odustanu od rada, Upravni odbor je ovlašten da umjesto tog člana kooptira drugog redovitog člana Udruge u sastav Upravnog odbora. Upravni odbor može na upražnjeno mjesto kooptirati najviše dva (2) člana s mandatom do prve naredne Skupštine, kada se obavljaju izbori na upražnjena mjesta. Članak 28. Predsjednik udruge saziva sjednice i rukovodi radom Upravnog odbora. Upravni odbor može odlučivati ako je na sjednici nazočna natpolovična većina članova Upravnog odbora. Upravni odbor donosi odluke većinom glasova nazočnih članova. Članak 29. Za svoj rad Upravni odbor odgovoran je Skupštini Udruge kojoj podnosi izvješće o svom radu. Svaki član Upravnog odbora osobno je odgovoran za svoj rad u Upravnom odboru. Članak 30. Upravni odbor: - saziva Skupštinu udruge - utvrđuje prijedlog programa rada, Poslovnika i Statuta koji se podnosi Skupštini na razmatranje i prihvaćenje - utvrđuje prijedlog financijskog plana, - brine o izvršenju usvojenog programa rada i provedbi odluka Skupštine Udruge - upravlja sredstvima i imovinom Udruge - podnosi izvješće o radu Skupštini Udruge, - verificira mandat predstavnika Udruge u saveze ili zajednice srodnih udruga - imenuje komisije i stručna tijela po potrebi, te im određuje zadatke - donosi opće akte Udruge po ovlasti Skupštine - obavlja i druge poslove predviđene Statutom i drugim općim aktima udruge. - donosi odluku o zapošljavanju stručnih djelatnika u Udruzi Članak 31. Nadzorni odbor nadzire materijalno i financijsko poslovanje udruge. Članak 32. Nadzorni odbor ima tri (3) člana i zamjenika članova, koje bira Skupština udruge iz sastava redovnih članova, a predsjednika biraju članovi Nadzornog odbora iz svog sastava. Mandat članova Nadzornog odbora traje četiri (4) godine. Ako član Nadzornog odbora iz nekog razloga ne može obnašati svoju dužnost (bolest, smrt, preselenje..), Upravni odbor će na njegovo mjesto kooptirati zamjenika do prve Skupštine. Sjednice Nadzornog odbora održavaju se prema potrebi, a odluke se donose većinom glasova svih članova Nadzornog odbora. Članak 33. Upravni odbor može povremeno ili trajno uposliti ili na drugi način u skladu sa zakonom angažirati potrebne djelatnike za obavljanje stručnih ili administrativnih poslova u udruzi. Međusobna prava, obaveze i odgovornosti djelatnika stručne službe i udruge utvrđuju se Ugovorom o radu koji zaključuje svaki pojedini djelatnik s udrugom koju zastupa predsjednik udruge. Radom Stručne službe rukovodi predsjednik i odgovoran je za njezin rad.. Financijska sredstva za angažiranje djelatnika stručne službe osigurava Udruga. VI STEGOVNI POSTUPAK Članak 35. Članovi Upravnog odbora, komisije i drugih radnih tijela za svoj rad odgovorni su organu koji ih je izabrao, odnosno imenovao. Svaki član organa ili radnih tijela odgovoran je pojedinačno za svoj rad i za rad organa ili radnog tijela kojeg je član. Ako članovi organa i radnih tijela svoje dužnosti i obaveze obavljaju u suprotnosti s odredbama Statuta i drugih općih akata Udruge ili se nemarno odnose prema preuzetim obvezama, može se pokrenuti postupak za opoziv pojedinog člana ili stegovni postupak. Postupak za opoziv ili stegovni postupak može se pokrenuti na zahtjev Nadzornog odbora ili najmanje deset (10) članova Skupštine putem Stegovne komisije koju po potrebi imenuje Upravni odbor. Članak 36. Upravni odbor imenuje tri (3) člana Stegovne komisije Stegovna komisija donosi Poslovnik o svom radu. Ako član Stegovne komisije iz nekog razloga ne može obnašati svoju dužnost (bolest, smrt, preselenje..), Upravni odbor će na njegovo mjesto kooptirati drugog člana. Stegovna komisija vodi postupak i predlaže mjere Upravnom odboru koji može izreći stegovnu mjeru opomene ili isključenja iz Udruge. Odluke o stegovnom postupku donose se većinom članova Upravnog odbora. Članak 37. Protiv odluke Upravnog odbora u stegovnom postupku može se u roku od 15 dana, računajući od dana dostave odluke, podnijeti žalba Skupštini udruge, koja će svoju konačnu odlluku donijeti na svojoj prvoj sjednici. VII UDRUŽIVANJE I USTROJSTVENI OBLICI UDRUGE Članak 38. Ustrojstveni oblici Udruge su sekcije ukoliko se za njih ukaže potreba. Svaka sekcija je zastupljena s najmanje jednim (1) predstavnikom u Upravnom odboru. Članak 39. Udruga se može udružiti u nacionalni savez. Putem nacionalnog saveza ostvaruje se kontakt sa Zajednicom saveza osoba s invaliditetomn Hrvatske, europskim i svjetskim asocijacijama, dok Udruga ostvaruje međunarodnu suradnju s udrugama istog ili sličnog nivoa organiziranja. Odluku o udruživanju i izboru delegata donosi Skupština Udruge na prijedlog Upravnog odbora. Članak 40. Redovni članovi Udruge, zbog ostvarivanja posebnih interesa mogu po svom nahođenju i dragovoljno osnivati ogranke (podružnice, sekcije, klubove i druga tijela) na području Krapinsko-zagorske županije, bez statusa pravne osobe. Cilj osnivanja ogranka (podružnice, sekcije, kluba ili drugih tijela) može biti lakše i efikasnije rješavanje specifičnih poblema članova prema mjestu stanovanja ili organiziranje različitih aktivnosti (športskih, kulturnih, edukativnih, uslužnih i sl.). Članak 41. Inicijativu za osnivanje ustrojstvenog oblika Udruge trebaju dati najmanje tri redovna člana Udruge. Pokrenuta inicijativa o osnivanju ustrojstvenog oblika udruge ostvaruje se uz pomoć i podršku Upravnog odbora. Odluku o davanju ovlaštenja za predstavljanje ustrojstvenog oblika Udruge donosi Skupština udruge na mandat od četiri (4) godine. Ustrojstveni oblici Udruge imaju svoje programe (koji su sastavni dio cjelovitog programa Udruge i mogu se donijeti sukladno ovom Statutu), pravila o unutarnjem ustrojstvu i načinu rada koje donose članovi u skladu s programom rada Udruge i ovim Statutom. VIII IMOVINA UDRUGE I NAČIN STJECANJA IMOVINE Članak 42. Imovina udruge čine: novčana sredstva, pokretne stvari, nekretnine, te prava i obaveze Udruge. Članak 43. Udruga stječe imovinu: - od prihoda iz proračuna lokalne samouprave i lokalne uprave i samouprave - od prihoda iz proračuna države, - od sudjelovanja u radu na projektima i programima, - od vlastite gospodarske djelatnosti - od drugih vlastitih aktivnosti (priredbe, sponzorstva, tombole i sl.) - od donacija i dotacija - od članarine - od dobrovoljnih priloga i darova - iz drugih izvora u skladu sa zakonom. Članak 44. Sredstva Udruge raspoređuju se okvirno financijskim planom za svaku kalendarsku godinu. Imovinom Udruge raspolaže Upravni odbor prema odlukama Skupštine, odredbama ovog Statuta i zakonskim propisima. Naredbodavac za izvršenje financijskog plana je predsjednik Udruge. IX PRESTANAK UDRUGE Članak 45. Udruga prestaje s radom u slučajevima predviđenim zakonom. U slučaju prestanka rada Udruge, nakon namire vjerovnika, preostala će imovina pripasti njenom sljedniku ili članovima udruge. Članak 46. U slučaju prestanka rada na temelju odluke Skupštine, ista donosi odluku o prestanku djelovanja Udruge dvotrećinskom većinom glasova svih članova. X PRIJELAZNE I ZAVRŠNE ODREDBE Članak 47. Izmjene i dopune Statuta donose se na način propisan za njegovo donošenje. Tumačenje ovog Statuta daje Skupština Udruge, a tumačenje drugih akata daje Upravni odbor Udruge. Članak 48. Ovaj Statut usvojen je na Osnivačkoj skupštini Udruge, dana 13. 04. 2007. godine Članak 49. Statut stupa na snagu danom donošenja. U Krapini, 13. travanj 2007. PREDSJEDNICA UDRUGE Mirjana Janžek