About MECP2D
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The MECP2 Duplication Foundation is a family founded organization providing support for the MECP2 duplication community. Our foundation began shortly after the diagnosis of our son Everett in 2018. At our families lowest moment we rallied together and made a promise to find a cure for his condition. With the help of his family and community we have made a commitment to help provide the best possible quality of life for Everett and all of those affected by MECP2 duplication syndrome.
Since our beginning we have connected with many other families and developed a foundation board of dedicated individuals made up of affected families, researchers, physicians, politicians, and business leaders. In our first year we successfully supported multiple research projects at the Jan and Dan Neurological Research Center that are positive steps toward developing a treatment for MECP2 duplication syndrome.
It is the mission of the MECP2 Duplication Foundation to provide families diagnosed with information and support, to increase awareness of the disorder, and to provide funding to cutting edge research that will one day treat those affected and enhance their quality of life.
Join the MDS Registry
Join our MDS registry and help provide a foundation for research, studies, and provide important information for any future treatment.
All donations support families, research, and a cure for MECP2 duplication syndrome. Donate directly, or learn how we can help with your personal fundraiser.
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MDS Registry
MECP2 Duplication Foundation is a 501c3 non-profit organization.
Tax ID: #83-2819009
Copyright 2019 MECP2 Duplication Foundation. All rights reserved.
July is Mecp2 Duplication Awareness Month!
You can help accelerate our search for a cure by spreading awareness.