Protect federal funds for neurofibromatosis by acting now! Fill out the form below to Raise your Voice for NF Research. Use (and SHARE!) the form below to quickly reach your Senators to request federal funding for neurofibromatosis and schwannomatosis research.
Thanks for letting me help give a voice to those in need.
My granddaughter has NF 1. I did not know about this organization. Though she has many issues she is a Junior in college now and is working her way through. I'm so glad to hear about this and happy to add my name. Thank you for your good work and efforts towards this devastating condition.
Mary, where do you live?
My family supports everything you try to do to help my two grandchildren with NF1 and all the others who have it also. We will be at the walk in Naperville this year again. Conner's Crusaders will be walking in memory of my student who just passed from NF on March 13, 2018.
We are very excited to hear you are walking this year. We are very sorry to hear about your student.