Amplifying the Patient Voice in Cancer Care
In cancer care, goals should be informed by what the patient considers to be most important. This is why our team at the Research and Training Institute is developing a new tool that can be used to measure what really matters to patients- Valued Outcomes in the Cancer Experience (VOICE™).
Share Your Cancer Experience
By Maddie Buyers
Chef Hans Rueffert, a stomach cancer survivor who has appeared on The Food Network, has recorded a new 90-second video about the Cancer Experience Registry.
The Registry is free, confidential and open to anyone who has been diagnosed with cancer or provides care to someone with cancer.
Insight into the Patient Experience
By Courtney Colahan
Earlier this week, the Research and Training Institute at the Cancer Support Community hosted Insight into the Patient Experience, a special program commemorating the release of its second Registry Report based on the findings of the Cancer Experience Registry.
New Research Presented by CSC at ASCO 2017
By Henry Duong
The Cancer Support Community was honored to return to ASCO and we did not come empty-handed. Armed with three abstracts and one poster presentation, CSC's Research and Training Institute (RTI) team was ready to share our research with the oncology community. Through the Cancer Experience Registry®, the RTI has collected data from over 11,000 cancer patients and caregivers—with every type of cancer represented.
Make Our Lung Cancer Community More Visible - Share Your Experience
Calling all lung cancer patients/survivors and care partners! The science is finally moving faster, providing more treatment options and hope for the future. Now we also need to help shape what the future looks like in other ways. Here in Lung Cancer Awareness Month, please take a few minutes to register for the Cancer Experience Registry and fill out the questionnaire.
For All The Caregivers
In 2015, President Barack Obama proclaimed November National Family Caregivers Month to recognize the hard work and dedication of all the selfless caregivers around the country. At the Cancer Support Community, we understand that caregivers are an essential part of the cancer care team from the start. Caregivers can be spouses, partners, children, relatives or friends who help, care and support those living with cancer.
Act Now: Making a Difference in Cancer Policy
By Nick Power
This month, we're continuing our Many Faces of Advocacy campaign by highlighting policy advocacy. Policy advocacy is probably what you first think of when you hear the word "advocacy." A cancer policy advocate pushes for changes in government that will improve the lives of people affected by cancer. This can come in many forms, from writing a letter to your congressional representatives to spreading the word about important legislation using social media.
Community Advocacy for You
Getting involved in your community is one of the most rewarding ways to help people impacted by cancer. That's why this past month, we've been talking about the different possibilities for becoming a community advocate. Let's recap what we've discussed and what we can all do going forward to make sure that no one in our communities faces cancer alone.