Provides a website resource,on-line discussion forum and telephone support for people affected by albinism.
Aniridia Network UK provides a positive, supportive network of families, individuals and professionals in order to share ideas, experiences and give emotional support. It provides information to health professionals, patients and their families, about aniridia, the related conditions and their implications for the patient.
BUS supports patients with Birdshot, particularly when first diagnosed and provides up-to-date information about the condition and treatment options to help empower patients and ensure they have access to the most appropriate treatment possible.
The priority for the Group is to create opportunities to bring families together. If you are interested in attending an event or helping to organise one in your area, follow the link below.
An online community where people can discuss issues related to this condition.
An on-line forum where people can discuss any aspect of dystonia.
Friends in Need is a way for people affected by depression to meet online and in their local area. It's free to join and a great way to share support.
A on-line discussion forum for glaucoma patients and their families. The website also includes information about all aspects of glaucoma.
An on-line forum where people with an interest in the condition can raise and discuss issues.
The group meets on the last Monday of every month.
Provides information and a range of literature about Marfan syndrome. Members are also invited to various events organised by the association.
Membership gives access to advisors with information about neurofibromatosis. There are also local groups in some areas, where you can share information.
Retina UK volunteers run a number of Local Groups in towns across the UK. These enable people with RP to socialise and support each other as well as raise funds and run events on our behalf.
Meets at Singleton Hospital, Swansea. The group is coordinated by the ECLO and ABM Glaucoma Nurse Practitioner.
A membership organisation for people with keratoconus. The website has information about the condition, and an on-line discussion forum.
An on-line forum providing information and support to families affected by the condition. Some information is also available to download.
Young SANE is a virtual community that focuses on mental health for people aged under 25. They want to highlight the issues that are particularly relevant to young people and talk about their unique needs. Young SANE also celebrates the ingenuity, passion and dedication of young people who have made a commitment to tackling mental health stigma, and changing mental health for good.