What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients
Morgan L. Brown, Luis G. Quinonez, Hartzell V. Schaff, Thoralf M. Sundt
Background: Little information exists on the quality of the data obtained in follow-up surveys in cardiac surgical patients. We designed a questionnaire to capture relevant cardiac surgical outcomes in adult patients and validated it against similar variables in the medical record. Methods: Questionnaires were mailed to 200 consecutive patients who underwent cardiac operations and had a complete cardiovascular consultation more than 1 month after hospital dismissal. The sensitivity and specificity for each question was compared with the electronic medical record. Results: The median age at operation was 62.5 years (range, 19.6 to 91.1 years). The mean age of responders (n = 149, 75%) was 69 ± 13 years, and 93% lived independently in their own home. Responders and nonresponders were similar. Sensitivity and specificity of self-reporting (95% confidence intervals) included atrial fibrillation, 74% (60% to 85%) and 94% (87% to 98%); stroke, 89% (52% to 100%) and 97% (93% to 99%); bleeding requiring hospitalization, 57% (18% to 90%) and 96% (92 to 99%); permanent pacemaker implantation, 95% (75% to 100%) and 100% (97% 100%); and coronary stenting, 93% (66% to 100%) and 99% (96% to 100%). Conclusions: Patients were reasonably accurate in reporting (high specificity) when asked about a medical condition that was not present, but were not always aware of documented medical issues (moderate sensitivity). When asked about procedures, responses were highly sensitive, specific, and accurate. Patients had difficulty discriminating among complex invasive procedures. Clinical investigators must be aware of the limitations of the data obtained from surveys, and positive responses should be confirmed.
Annals of Thoracic Surgery
https://doi.org/10.1016/j.athoracsur.2008.08.054
10.1016/j.athoracsur.2008.08.054
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Medical Records Medicine & Life Sciences 100%
Sensitivity and Specificity Medicine & Life Sciences 35%
Data Accuracy Medicine & Life Sciences 25%
Electronic Health Records Medicine & Life Sciences 24%
Atrial Fibrillation Medicine & Life Sciences 21%
Hospitalization Medicine & Life Sciences 17%
Referral and Consultation Medicine & Life Sciences 17%
Research Personnel Medicine & Life Sciences 16%
Brown, M. L., Quinonez, L. G., Schaff, H. V., & Sundt, T. M. (2008). What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients. Annals of Thoracic Surgery, 86(6), 1888-1896. https://doi.org/10.1016/j.athoracsur.2008.08.054
What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients. / Brown, Morgan L.; Quinonez, Luis G.; Schaff, Hartzell V.; Sundt, Thoralf M.
In: Annals of Thoracic Surgery, Vol. 86, No. 6, 01.12.2008, p. 1888-1896.
Brown, ML, Quinonez, LG, Schaff, HV & Sundt, TM 2008, 'What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients', Annals of Thoracic Surgery, vol. 86, no. 6, pp. 1888-1896. https://doi.org/10.1016/j.athoracsur.2008.08.054
Brown ML, Quinonez LG, Schaff HV, Sundt TM. What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients. Annals of Thoracic Surgery. 2008 Dec 1;86(6):1888-1896. https://doi.org/10.1016/j.athoracsur.2008.08.054
Brown, Morgan L. ; Quinonez, Luis G. ; Schaff, Hartzell V. ; Sundt, Thoralf M. / What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients. In: Annals of Thoracic Surgery. 2008 ; Vol. 86, No. 6. pp. 1888-1896.
@article{3f4761eadf494627bb68c0494f3e2069,
title = "What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients",
abstract = "Background: Little information exists on the quality of the data obtained in follow-up surveys in cardiac surgical patients. We designed a questionnaire to capture relevant cardiac surgical outcomes in adult patients and validated it against similar variables in the medical record. Methods: Questionnaires were mailed to 200 consecutive patients who underwent cardiac operations and had a complete cardiovascular consultation more than 1 month after hospital dismissal. The sensitivity and specificity for each question was compared with the electronic medical record. Results: The median age at operation was 62.5 years (range, 19.6 to 91.1 years). The mean age of responders (n = 149, 75%) was 69 ± 13 years, and 93% lived independently in their own home. Responders and nonresponders were similar. Sensitivity and specificity of self-reporting (95% confidence intervals) included atrial fibrillation, 74% (60% to 85%) and 94% (87% to 98%); stroke, 89% (52% to 100%) and 97% (93% to 99%); bleeding requiring hospitalization, 57% (18% to 90%) and 96% (92 to 99%); permanent pacemaker implantation, 95% (75% to 100%) and 100% (97% 100%); and coronary stenting, 93% (66% to 100%) and 99% (96% to 100%). Conclusions: Patients were reasonably accurate in reporting (high specificity) when asked about a medical condition that was not present, but were not always aware of documented medical issues (moderate sensitivity). When asked about procedures, responses were highly sensitive, specific, and accurate. Patients had difficulty discriminating among complex invasive procedures. Clinical investigators must be aware of the limitations of the data obtained from surveys, and positive responses should be confirmed.",
author = "Brown, {Morgan L.} and Quinonez, {Luis G.} and Schaff, {Hartzell V.} and Sundt, {Thoralf M.}",
doi = "10.1016/j.athoracsur.2008.08.054",
journal = "Annals of Thoracic Surgery",
T1 - What Are Patients Really Telling Us? Comparison of Survey Responses and the Medical Record in Cardiovascular Surgical Patients
AU - Brown, Morgan L.
AU - Quinonez, Luis G.
AU - Schaff, Hartzell V.
AU - Sundt, Thoralf M.
N2 - Background: Little information exists on the quality of the data obtained in follow-up surveys in cardiac surgical patients. We designed a questionnaire to capture relevant cardiac surgical outcomes in adult patients and validated it against similar variables in the medical record. Methods: Questionnaires were mailed to 200 consecutive patients who underwent cardiac operations and had a complete cardiovascular consultation more than 1 month after hospital dismissal. The sensitivity and specificity for each question was compared with the electronic medical record. Results: The median age at operation was 62.5 years (range, 19.6 to 91.1 years). The mean age of responders (n = 149, 75%) was 69 ± 13 years, and 93% lived independently in their own home. Responders and nonresponders were similar. Sensitivity and specificity of self-reporting (95% confidence intervals) included atrial fibrillation, 74% (60% to 85%) and 94% (87% to 98%); stroke, 89% (52% to 100%) and 97% (93% to 99%); bleeding requiring hospitalization, 57% (18% to 90%) and 96% (92 to 99%); permanent pacemaker implantation, 95% (75% to 100%) and 100% (97% 100%); and coronary stenting, 93% (66% to 100%) and 99% (96% to 100%). Conclusions: Patients were reasonably accurate in reporting (high specificity) when asked about a medical condition that was not present, but were not always aware of documented medical issues (moderate sensitivity). When asked about procedures, responses were highly sensitive, specific, and accurate. Patients had difficulty discriminating among complex invasive procedures. Clinical investigators must be aware of the limitations of the data obtained from surveys, and positive responses should be confirmed.
AB - Background: Little information exists on the quality of the data obtained in follow-up surveys in cardiac surgical patients. We designed a questionnaire to capture relevant cardiac surgical outcomes in adult patients and validated it against similar variables in the medical record. Methods: Questionnaires were mailed to 200 consecutive patients who underwent cardiac operations and had a complete cardiovascular consultation more than 1 month after hospital dismissal. The sensitivity and specificity for each question was compared with the electronic medical record. Results: The median age at operation was 62.5 years (range, 19.6 to 91.1 years). The mean age of responders (n = 149, 75%) was 69 ± 13 years, and 93% lived independently in their own home. Responders and nonresponders were similar. Sensitivity and specificity of self-reporting (95% confidence intervals) included atrial fibrillation, 74% (60% to 85%) and 94% (87% to 98%); stroke, 89% (52% to 100%) and 97% (93% to 99%); bleeding requiring hospitalization, 57% (18% to 90%) and 96% (92 to 99%); permanent pacemaker implantation, 95% (75% to 100%) and 100% (97% 100%); and coronary stenting, 93% (66% to 100%) and 99% (96% to 100%). Conclusions: Patients were reasonably accurate in reporting (high specificity) when asked about a medical condition that was not present, but were not always aware of documented medical issues (moderate sensitivity). When asked about procedures, responses were highly sensitive, specific, and accurate. Patients had difficulty discriminating among complex invasive procedures. Clinical investigators must be aware of the limitations of the data obtained from surveys, and positive responses should be confirmed.
U2 - 10.1016/j.athoracsur.2008.08.054
DO - 10.1016/j.athoracsur.2008.08.054
JO - Annals of Thoracic Surgery
JF - Annals of Thoracic Surgery