Epilepsy is a brain disorder that affects 1 in 100 people worldwide and is characterized by repeated, unprovoked seizures. Epilepsy can develop at any point during the lifespan, and in most cases the cause is unknown. 1 in 3 people with epilepsy have seizures that cannot be controlled with medication and will require more innovative treatment options.
The Epilepsy Priority Setting Partnership (PSP) aims to identify unanswered questions that exist related to the cause, diagnosis and treatment of epilepsy and seizures. This PSP will be the first such initiative to address epilepsy in Canada, and we hope that the results of this PSP will re-shape the research agenda for epilepsy, giving a stronger voice to the patients, carers and clinicians who live and work with epilepsy every day.
The initial question-gathering survey for this PSP opened in October 2019.