Prevalence and Incidence of Ehlers-Danlos syndrome
Prevalance of Ehlers-Danlos syndrome:
estimated 1 per 250,000 people suffer from the vascular type of Ehlers-Danlos syndrome, Genetics Home Reference website ... see also overview of Ehlers-Danlos syndrome.
approx 1 in 250,000 or 0.00% or 1,087 people in USA [Source statistic for calcuation: "estimated 1 per 250,000 people suffer from the vascular type of Ehlers-Danlos syndrome, Genetics Home Reference website" -- see also general information about data sources]
Ehlers-Danlos syndrome: Rare Disease
Ehlers-Danlos syndrome is listed as a "rare disease" by the Office of
Rare Diseases (ORD) of the National Institutes of Health
(NIH). This means that Ehlers-Danlos syndrome, or a subtype of Ehlers-Danlos syndrome,
affects less than 200,000 people in the US population.
About prevalence and incidence statistics:
The term 'prevalence' of Ehlers-Danlos syndrome usually refers to the estimated population
of people who are managing Ehlers-Danlos syndrome at any given time.
The term 'incidence' of Ehlers-Danlos syndrome refers to the annual diagnosis rate,
or the number of new cases of Ehlers-Danlos syndrome diagnosed each year.
Hence, these two statistics types can differ:
a short-lived disease like flu can have high annual incidence but low prevalence,
but a life-long disease like diabetes has a low annual incidence but high prevalence.
For more information see about prevalence and incidence statistics.