What is Ehlers-Danlos Syndrome
“Erica was invited to explain to the whole school about a genetic disorder that nearly killed her a few years ago. It is called Ehlers-Danlos Syndrome (EDS). It is a problem with the collagen in the body so it affects every cell in the body. Every system is affected. She lives in constant pain, more than can be imagined, yet she has a bright disposition and hope for the future. Please help with her cause to inform and educate others about EDS. She is hopeful for a cure despite little to no research dollars allocated for this purpose.”
Amazing video from a brave, young girl. Well done for explaining so clearly. You’re spreading awareness!