The UK Multiple Sclerosis (MS) Register helps research into this condition by gathering data to answer fundamental questions and giving researchers access to our information.
An estimated 100,000 people in the UK live with MS, yet the exact number remains unknown, as do answers to questions about any regional differences in how people receive treatment and how the different types of MS affect different people.
The UK MS Register, based in Swansea University Medical School and funded by the MS Society, captures vital real-world data about living with MS in the UK.
We do this in two ways:
- People with MS recording information about their MS directly to us through our website via simple questionnaires;
- Our collaboration with hospitals across the UK to link consented website participants’ medical records with their questionnaire responses.
The data we gather about the physical, environmental and social effects for people and carers affected by the condition provides an extremely rich bank of data and huge potential for research.
The data is used by researchers in the University, across the UK and in Europe.
The Multiple Sclerosis (MS) Register UK has been awarded a total of £2.5 million by the MS Society.