Freeman-Sheldon Parent Support Group
Includes a members-only area with a bulletin board and pictures of afflicted children.
Freeman-Sheldon Syndrome - Wikipedia
Detailed description of incidence, nosology, inheritance, and condition management.
Geneva Foundation for Medical Education and Research
Several pictures of children with typical FSS characteristics.
National Craniofacial Association
Summarizes the child's likely needs, and has links to other resources.
Online Mendelian Inheritance in Man
Describes many case reports of FSS (also known as whistling face windmill vane hand syndrome), with references and a summary of the state of knowledge of the genetics.
All the Web -
Google USENET -