Cognitive changes can occur in Parkinson's Disease (PD). Cognitive changes can affect quality of life for both the person with PD and the caregiver/family. Here are some good resources on cognitive changes in PD.
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Cognition: A Mind Guide to Parkinson’s Disease
Published by the Parkinson’s Foundation, 2018
This 52-page booklet (PDF) offers coping strategies for people with cognitive changes due to Parkinson’s disease, and their caregivers. The information, tips, and stories are intended to help organize thoughts and questions for your medical team. Read online, download the e-book, or order a physical copy.
Cognitive Changes in Parkinson's Disease
By the American Parkinson Disease Association, 2017
This two-page fact sheet (PDF) describes cognitive changes common in those with Parkinson's and how cognition is evaluated. It discusses mild cognitive impairment (MCI) and dementia and the causes of MCI in those with PD. Finally, medication and non-medication management strategies are suggested, along with a reminder that driving is impacted by cognitive changes and should be evaluated.
Cognitive Impairment and Behavioral Problems in Parkinson’s Disease: Essential Facts for Patients
Published by the International Parkinson and Movement Disorder Society (MDS), 2016
This 1-page fact sheet (PDF) outlines the types of cognitive problems that can happen in Parkinson’s disease, including hallucinations and delusions. It briefly addresses why they occur, what you can do to delay cognitive symptoms and medications that may help. Everyone with Parkinson’s should have their estate documents (will, trust and powers of attorney).
Make Your Voice Heard! Healthy Communication and Parkinson's Disease
By the American Parkinson Disease Association, 2019
This 17-page booklet (PDF) describes changes to the voice, speech, facial expression, and cognition due to Parkinson's disease, along with treatment options and things you can do right now to compensate for these changes.
Mild Cognitive Impairment in Parkinson's Disease
By the American Parkinson Disease Association, 2021
This two-page fact sheet (PDF) defines mild cognitive impairment (MCI) and discusses the prevalence of MCI in Parkinson's, how you can tell if you have MCI, what you should do if you notice cognitive changes as a person with Parkinson's or a care partner, the conversion from MCI to dementia, ways to help prevent this progression from MCI to dementia, strategies to mitigate the effects of MCI on daily life, and participating in clinical trials.
Mind, Mood & Memory
Edited by Rebecca Martine, APRN, and John Duda, MD. Published by National Parkinson Foundation (Now the Parkinson's Foundation)
This 94-page booklet (PDF) provides an overview of the mental health aspects of PD, including depression, anxiety, loss of emotional control, and loss of impulse control, and how they can be effectively manage. Changes in memory, confusional states, daytime sleepiness, sleep problems, and generalized fatigue are addressed. There's a full chapter on Dementia with Lewy Bodies.
En Español: La Enfermedad de Parkinson: Mente, Estado de Animo y Memoria
Navigating Cognitive Changes in Parkinson’s Disease: A Guide for Patients and Families
By Rachel Dolhun, MD. Published by the Michael J. Fox Foundation, September 2019
Cognitive change is a common non-motor symptom of Parkinson’s. Attention, memory, executive function, language and visuospatial skills may be affected. This 35-page booklet (PDF) shares ways boost brain health and how to keep track of cognitive changes. It defines mild cognitive impairment and dementia, and shares treatments and management tips for dementia, hallucinations and delusions. It encourages families to communicate about cognitive change and cites areas of ongoing research in dementia.
Published by Parkinson's Foundation
This webpage notes that mental and motor decline tend to occur together as Parkinson's progresses. Cognitive impairment is different from dementia but can still have a negative impact on caregiver stress and quality of life. The causes, symptoms, diagnosis, and co-existing conditions that affect thinking and memory, as well as treatment and tips for caregivers are summarized.
Memory & Thinking Problems
Published by the Michael J. Fox Foundation
This webpage defines mild cognitive impairment and the dementia associated with Parkinson's disease, causes and treatments, evaluating cognitive problems with your doctor, maintaining brain health, and ongoing research.
By Jennifer G. Goldman, MD, MS. Published by APDA National Young Onset Center, August 2011
The author, a neurologist, defines “cognition," describes cognitive changes in PD, and offers other reasons for cognitive symptoms.
En Español: Cambios Cognitivos en la enfermedad de Parkinson
Ask the MD: Cognitive Impairment and Parkinson’s Disease
By The Michael J. Fox Foundation, Foxfeed Blog, September 14, 2016
This 4:27-minute video is an explanation of cognitive changes that can happen in Parkinson’s disease. Dr. Rachel Dolhun explains how doctors evaluate cognitive changes to exclude other conditions that may be correctable. She distinguishes between mild cognitive impairment and dementia, with some treatments for each.
Brain Boost: A Conversation on Thinking
By the Michael J. Fox Foundation, March 18, 2021
In this 1-hour webinar a panel of experts and a person with Lewy Body Dementia answered moderator questions about cognitive changes typical in those with Parkinson's Disease (PD) and Lewy Body Dementia (LBD). They discussed what's normal and what's not, the impact cognitive changes have on everyday life, what you can do to preserve brain health, strategies for both the person with PD and care partners to cope with cognitive changes, and what researchers know about predicting who is likely to suffer significant cognitive change with PD.
Caregiving Strategies for PD Dementia
By PMD Alliance, January 11, 2021
In this 1-hour webinar Angelo Domingo, Psy.D. does a good job of explaining the cognitive changes caregivers can expect in the later stages of Parkinson's and shared numerous tips for accomplishing daily tasks as smoothly as possible despite those changes.
Cognition & How it Relates to Other Non-Motor Symptoms
By the Davis Phinney Foundation, October 30, 2019
In this 1-hour webinar Dr. Jennifer Goldman discusses how the non-motor symptoms of Parkinson’s affect cognition, behavior, sleep, autonomic function and sensory function. If non-motor symptoms become more pronounced as Parkinson’s progresses, quality of life may be greatly impacted. [Registration is required, but is free.]
Cognition and Mood and How to Manage Them
By Davis Phinney Foundation, October 3, 2020
In this 50-minute webinar Greg Pontone, MD, distinguishes the cognitive changes commonly seen in those with dementia from the cognitive changes seen in Parkinson's disease (PD). He shares medications used to treat dementia and highlights those that are more effective for the cognitive changes in Parkinson's. Dr. Pontone also talks about depression and anxiety; specifically, the impact depression has on quality of life, and meditations to treat it, and how increased feelings of anxiety can be directly related to the wearing-off of medications.
Webinar notes on the Stanford PD Community Blog
Cognition & PD
By the American Parkinson Disease Association, February 17, 2021
In this 1-hour webinar, movement disorders specialist Kathleen Poston, MD, explains the value of having a thorough cognitive evaluation as a baseline for those with PD. She also discusses how to identify concurrent issues that can make cognitive changes worse, and shares both medication and non-medication strategies for addressing cognitive changes, before answering questions.
Cognition and Psychosis
By PMD Alliance, June 17 2020
In this 48-minute webinar, geriatric psychiatrist Daniel Weintraub, MD, provides an overview of the neuropsychiatric and cognitive symptoms that can occur in PD, as well as how those symptoms can be managed.
Webinar notes on the Stanford PD Community Blog
Cognition, Caring and Coping
By the World Parkinson Coalition, September 2020
This 1-hour virtual panel begins with a series of short presentations on cognitive changes in people with Parkinson’s by four speakers with different experiences in this topic: a registered nurse, a social worker, and a person with Parkinson’s with his caregiver husband. Following the presentations, the discussion and question and answer period was focused on the role of PD caregivers when a person with PD is experiencing cognitive changes.
Cognitive Issues: Advice for Parkinson’s Care Partners
By the Parkinson’s Foundation, November 10, 2015
In this 1-hour webinar, movement disorder specialist Dr. Rebecca Gilbert discusses why cognitive issues are part of PD, types of cognitive issues in PD, modifiable causes of cognitive issues, what can improve cognition, the impact psychosis and visual hallucinations on people with PD, lifestyle modifications that can improve quality of life for both the person with PD and their care partner.
Dealing with Dementia in PD
By the Parkinson’s Foundation, March 1, 2016
In this 1-hour webinar movement disorder specialist, Dr. Jennifer Goldman, provides an overview of clinical symptoms and current research on the risks for and causes of dementia in PD. She discusses treatment and management strategies, along with practical tips and resources for people with Parkinson’s and care partners dealing with dementia in PD.
Dementia and Parkinson's Disease
By Parkinson Society British Columbia, October 28, 2020
In this 2-hour webinar geriatrician Naaz Parmar provides an understanding of dementia as a disease, the different subtypes of dementia, and how they affect a person with concurrent PD. This webinar also gives an overview of treatment options with lifestyle changes and medications. Coping strategies for a person with dementia and their loved ones, will also be discussed.
How Can Speech Therapy Help with Thinking Changes in Parkinson's
By the Parkinson's Foundation, August 16, 2021
Darla Freeman, SLPD, took about 20 minutes to explain that speech pathologists can help with speech enunciation and voice volume, and also with cognitive problems, memory, word finding, the ability to think of what you want to say, and drooling. She provided some tips for each of those challenges and talked abouthow speech therapy is conducted before answering listener questions for the rest of the hour.
Webinar Notes on the Stanford PD Community Blog
How the Brain Progresses With PD
By PMD Alliance, November 5, 2020
In this one-hour webinar movement disorder specialist Yasar Torres-Yaghi shared how the pathology of Parkinson's disease begins in the gut before progressing to the brain. As the pathology expands throughout the brain it affects more neurotransnitters than just dopamine causing both motor and non-motor symptoms. Dr. Torres-Yaghi shares a widely used cognitive evaluation tool before answering questions about communicating well with your neurologist and advocating for the care you need.
Mental Health and PD
By the Parkinson’s Foundation, September 18, 2018
In this 1-hour webinar psychiatrist Laura March discusses the overlap of motor, cognitive, and psychiatric aspects of PD, as well as describing the features of co-morbid psychiatric disturbances, including depression, anxiety and psychosis along with general approaches to treatment.
Psychiatric & Cognitive Complications in Parkinson’s
By the Davis Phinney Foundation, September 11, 2019
Depression, anxiety, cognitive decline, psychosis and impulse control can be common in people with Parkinson’s. They affect quality of life for both people with Parkinson’s and care partners. In this webinar Dr Daniel Weintraub discusses these issues, the correlation between mood, motor function and Levodopa levels, and more. Registration is required, but it is free.
Webinar notes on the Stanford PD Community Blog
Spark: The Panel Discussion following the documentary about Robin Williams and his Battle With Lewy Body Dementia
By the Family Caregiver Alliance, June 30, 2021
In this 42-minute webinar Bruce Miller, MD, answers questions about Parkinson's Disease and Lewy Body Dementia (LBD). Panelists Dianne and Denise share their experiences getting diagnosed and caregiving for family members with LBD.
Webinar Notes on the Stanford PD Community Blog
Thinking and Memory Problems with Parkinson's Disease
By the Veteran's Administration
This 8-minute video alternates between an interview with a man sharing his memory problems due to Parkinson's disease, with doctors explaining how cognitive changes and memory problems manifest in PD and how they test to determine if those changes are significant enough to be treated as dementia.
Thinking Changes in Parkinson's - Engaging Neuropsychology
By the Parkinson's Foundation, January 6, 2021
In this 1-hour webinar Travis Turner, PhD, explains why you might be referred for a neuropsychological evaluation, what is done during such an evaluation, how the information learned during an evaluation is used, and tips for performing your best during an evaluation. After the talk he answered several questions about coping with cognitive changes when you have PD or are caring for someone with PD.
Understanding Thinking Changes in Parkinson's Disease
By the Parkinson's Foundation, April 7, 2021
In this 1-hour webinar listeners will learn key features of cognitive impairment in Parkinson’s disease, including what symptoms may occur and why they may develop. Strategies for dealing with cognitive changes will be discussed, along with medications and potential research interventions in the field. An interdisciplinary approach regarding cognitive impairment in Parkinson’s disease will be highlighted with the role of the movement disorders neurologist on the team.
Parkinson's Foundation Cognition Talk Series
By the Parkinson's Foundation
This seven-part online course is focused on cognition concerns and challenges of living with Parkinson’s. Each section (30 mins) of the series is presented by a specialized health professional discussing cognition from their viewpoint.
Cognitive Impairment and Dementia
Published by Medscape News. [Must sign up for a free Medscape account to view.]
This section from an article on psychiatric aspects of PD focuses on cognitive impairment and dementia. There is also a short discussion of the subtle differences between Parkinson's Disease Dementia and Dementia with Lewy Bodies.
Last updated August 2022 by Stanford Parkinson's Community Outreach.