This review investigated aspects of the additional burdens for carers typically arising from caring for persons with neurocognitive disorders, with a view to developing a consensus on the priorities of caregivers. An expert panel was consulted, comprising 68 informal carers of people with cognitive decline or neurocognitive disorders living at home.
Information for carers about the disease and treatment, and psycho-educational interventions, particularly concerning strategies for coping with behavioural disorders, were considered important:
“Caregivers assigned a very high importance to the dimension ‘information needs about their relative’s disease’, i.e. information on the disease, the treatment and the research; and to ‘coping skills’, i.e. skills related to emotional support, communication, relationship evolution with the relative and skills to cope with behavioural crisis, behavioural and cognitive disorders”. (p.1).
Novais, T. Mouchoux, C. [and] Kossovsky, M. [et al] (2018). Neurocognitive disorders: what are the prioritized caregiver needs? A consensus obtained by the Delphi method. BMC Health Services Research. December 29th 2018; 18(1): 1016.