Thank you to the more than 900 rare disease advocates who traveled from across the country to join us during Rare Disease Week on Capitol Hill 2020, February 25th – 28th! Advocates participated in 393 meetings with Members of Congress to carry the message: “Every voice matters!”

227 patient organizations were represented, united in a common goal: To make their rare voices heard.

Rare Disease Week on Capitol Hill, hosted by the Rare Disease Legislative Advocates (RDLA), a program of the EveryLife Foundation for Rare Diseases, is designed to educate and activate advocates and to foster relationships within the community.