ahlkal/WebMD588K · Datasets at Hugging Face

Age stringclasses 658 values	Sex stringclasses 2 values	Condition stringlengths 4 99 ⌀	Date stringlengths 8 10	Drug stringlengths 3 68	Drug ID int64 25 501k	Rating float64 1 5	Effectiveness int64 1 5	Ease of Use int64 1 5	Satisfication int64 1 5	Review stringlengths 1 4.03k ⌀
null	null	Other	4/14/2012	abacavir-oral	16,830	4.333333	5	5	3	this is a test
null	null	HIV	10/24/2010	abacavir-oral	16,830	1	1	1	1	Broke out in a mass of open sores, Dr. would not change as he stated I would get use to it. Quite drug after 6 mos went bach on drugs I was previously on.
45-54	Male	HIV	7/30/2008	abacavir-oral	16,830	2.666667	5	1	2	Took Ziagen in combination with Combivir for 6 1/2 years. Although it kept my viral load undetectable and t-cell count under control, the stomach problems and nausea were awful. Right along this combo, I took Prevacid to ease these side effects, hower the nausea didn't go away until I stopped taking this combination. I am now on Truvada and Reyataz: feel like I'm born again! The side effects will stop once you stop taking the med. Empower yourself and tell your doctor you insist on a change... of combination, especially if you are undetectable as you can always go back to the medication because you will not have developed resistance to it. Read More Read Less
45-54	Male	HIV	7/15/2008	abacavir-oral	16,830	3.666667	5	3	3	I am undetectable so that alone is Great News. I am however experiancing diffaculty breathing ever sense I started this medicine. Its been a couple years now but the breathing has not got any better. whats the worst of the 2 evils ??? also have stomach issues and sores in the mouth that I believe are reaction to this drug. all in all, I guess I am Healthy . My doctor does not seem to think that it warents taking me off this med so I have to deal with it.
35-44	Female	HIV	3/16/2023	triumeq-oral	166,877	4.666667	5	5	4	Been on it for 8 years. It's kept me undetectable but I have gained weight in an uneven fashion around my mid section. And I stop menstruating completely. Came off it for a few months, was so sick I couldn't get out of bed. And took it right back up and only side effect was I had to have food to take it the first few months or it made me sick. But overall it works.
null	null	HIV	5/21/2019	triumeq-oral	166,877	5	5	5	5	Diagnosed in March â??17 with viral load of 100K and CD4 less than 20. Started Triumeq after doctor tested for any reactions, alongside a suite of prophylactic antibiotics and anti-fungal (Flucanazole). Slight nausea at first, especially if I took all pills together. Within 3 months VL had dropped to 5000 and CD4 climbed up to mid 50s. By end of year one VL was hovering around 50 and CD4 was in the 200-300 range and was able to stop the antibiotics. For some reason I couldnâ??t get to VL u... ndetectable until about 18 months in. Now have been undetectable for last 9 months and CD4 hovers around 300-350. Side-effects are minimal- occasional nausea if I take on an empty stomach. I suspect the drug is facilitating weight gain around my mid-section as I work out frequently and have a hard time keeping weight off. I am considering switching to a newer medication (Jaluca) which only has two active medications instead of three, hopefully will continue to see positive results! Read More Read Less
35-44	Male	HIV	3/13/2019	triumeq-oral	166,877	4.666667	5	4	5	Good treatment no side effect except for appendicitis , few months after start taking the tablet got appendicitis there few similar cases, apart of this no other sides effects first treatment, an year next month , undetectable after 2 months start taking
65-74	Female	HIV	2/28/2019	triumeq-oral	166,877	3.666667	4	4	3	I was first diagnosed with aids 03/99 I had very little side affects from the combinations I was taking then for some reason my medication was change to Triumeq even though my numbers were excellent around 1000 CD4 undetectable viral load now with Triumeq CD4 around 700 to 800 and have put on alot of weight am breathless after walking about 30 ft, level of fatigue is high and I have seemed to have lost the will to do anything, I have been taking this drug about three years I think and wish that ... I had never been given this drug but changing to another would cut my options should drugs become less affective. Read More Read Less
null	null	HIV	11/15/2018	triumeq-oral	166,877	5	5	5	5	I was diagnosed summer of '17. A few days after I got back from vacation actually. Viral load was in the MILLIONS...thank God I hadn't contracted aids. When I first started triumeq I was absolutely miserable, the NAUSEA and EXTREME irritability put quite a strain on my relationship.marijuana and exercise have definitely played a helpful role in lessening the intensity of the side effects. WOULD NOT TRY TAKING AT WORK. Not until you've had a day off to see how you react to it.Absolutley take with... food.sorry not here to scare anyone. So there was a hiccup w my health insurance this last summer and I missed my dosage for a WEEK. Had this not happened I honestly think I would've been unetectable months ago.well Upon yesterday's visit (God Bless AHF dallas) to review my blood work from 1 week a go I am UNDETECTABLE AND STD free! I take my medicine every night , alarm set to 10pm, or my amazing partner will remind me.for the record I have smoked weed almost every night of the last year I have been on triumeq and I am now undetectable! Cutting back on cigarettes has also helped stress tremendously! Read More Read Less
25-34	Female	HIV	1/16/2018	triumeq-oral	166,877	5	5	5	5	i know it is quite soon to write this review but will update as time goes i was diagnosed in 12/17 with hiv and have been on the meds for 5 days now and i have had no side effects and i feel like myself. havent done blood work yet to see if it has helped but sure it has will keep you all updated thx
null	null	HIV	2/24/2017	triumeq-oral	166,877	5	5	5	5	I have been HIV Positive for 32 years, the last drugs I was on was Epzicom and Combivir , a year ago I started Triumeq . In the beginning I experienced sleeplessness, slight nausea and stomach gas. I had to change taking medicine from evenings to mornings to resole the sleeplessness. The side effects I experienced lasted for the first 3 months, but after that period I started feeling somewhat normal. The first positive thing I noticed was my skin became more hydrated and no more skin eruptions.... Now after one year on Triumeq I love this medication and I feel ver close to normal. I have noticed that I have gained a little weight evenly on my body but that is a small price to pay for the way I feel today. If you can tolerate the inital side effects of this med you will be okay in time. My Viral Load is still undetectable and my T-count is 1,150 which is up from 900 . Read More Read Less
25-34	Male	HIV	10/31/2016	triumeq-oral	166,877	5	5	5	5	I started this drug 3 months ago after an HIV/AIDS diagnosis with a viral load of 1.1 million and a CD4 of 14. In the first month my viral load went to 150 and my CD4 went to 76. Getting my next blood results in a couple days, and hopefully both numbers are continuing to improve. Major side effects (severe bone aches) for the first 5 days, but then after that no side effects that I can notice. Worth powering through the side effects as they will subside and this medication is the best on the mar... ket. Read More Read Less
null	null	HIV	8/8/2016	triumeq-oral	166,877	1	1	1	1	Triumeq did not work out for me. I switched to it from a Truvada and Reltegravir combination. Within in days of starting Triumeq I experienced debilitating fatigue and I felt completely drained of energy from morning to night. My sleep was disturbed and I woke each day feeling exhausted before even getting out of bed. I lost my appetite and interest in food and had a constant dry mouth, when I did eat food I felt nauseous. I'm usually fit and active and a keen runner but after starting Triumeq I... would get out of breath just climbing stairs and I lost motivation to exercise. I stuck with them for 2 months but didn't see any improvement within that time. I've now changed back to my previous regimen and I feel back to normal and so much better. I know others who get on fine with Triumeq - you have got to try it for yourself and see how you body responds to it. Read More Read Less
45-54	Male	HIV	6/8/2016	triumeq-oral	166,877	5	5	5	5	Diagnosed with HIV in August 2015. I was given Truvada along with one other drug to bring down initial viral load. After six weeks we switched to Triumeq and my viral load has been undetectable (under 40) ever since. No side effects whatsoever.
null	null	HIV	5/19/2016	triumeq-oral	166,877	5	5	5	5	I was diagnosed on February 11th...viral load a month later in March was 606,000, CD4 count was 508. I started Triumeq on March 30th. I took another blood test on May 17th and received results 2 days later. Viral load is now 50..not 50,000...50!! CD4 count shot up to 900! My doctor was so thrilled that she had to call me even though my follow up appointment with her wasn't for another 2 weeks. This drug has been phenomenal for me! Virtually no side effects. I just take it every morning a... fter breakfast. Read More Read Less
55-64	Male	HIV	4/27/2016	triumeq-oral	166,877	1	1	1	1	Truimeq medication change was a disaster; started with incidents of strange sweating, crotch felt hot, difficulty falling asleep, some cramping in my legs above my knees that I had not experienced before. By the second week began to experience increased muscle cramps. I experienced muscle imbalances in my legs. I experienced joint aches of my hips, knees, ankles, wrists and hands. By third week Neuropathy pain signifcantly worse and I was walking kind of strange from the combination of pain, bur... ning and muscle imbalances in my legs. I was unable to walk or stand for more than 10 minutes without feet burning and hurting and having to sit down. Pain in my wrists and hands all joints and nerve pressure points was constant. I felt discomfort when I urinated in that the nerves in my prostrate and head of my penis felt over stimulated as I urinated. I discontinued Truimeq after 3 weeks and went back on Sustiva/Combivir. My neuropathy pain has become worse as a result of taking this medication. Read More Read Less
45-54	Male	HIV	11/11/2015	triumeq-oral	166,877	1	1	1	1	I am a long term survivor, and I have never had a complication from HIV or any HIV medication. I took the blood test to make sure I was not allergic, and I also did my homework and found many positive reviews. I was basically bedridden for 19 days, and stopped the medication. 2 days later, I ended up in the ER with pancreas complications. In my opinion, they marketed this drug too quickly, and there are too many unknowns about long term use. 1 pill a day is certainly easier, but I regret changin... g my original regimen. Read More Read Less
35-44	Male	HIV	10/21/2015	triumeq-oral	166,877	5	5	5	5	No side effects
55-64	Male	HIV	6/30/2015	triumeq-oral	166,877	5	5	5	5	As a 25-year survivor, I'm been on several regimens--this being the easiest (1 pill) and least side effects. Give it a try if the doc thinks you are a good candidate; be a positive thinker and hope it works.
null	null	HIV	3/3/2015	triumeq-oral	166,877	5	5	5	5	great meds
35-44	Male	HIV	12/4/2014	triumeq-oral	166,877	2.666667	5	2	1	Switched to Triumeq as part of the study switching from 3 pills to 1, and I got hit by all supposedly "infrequent" side effects and severely: severe mood swings, nausea, not feeling well, fatigue, low appetite, low sex drive, tarry stools, the list goes on. On top of that, 3 months into it, I now have anemia. My doctor did the test for potential allergic reaction to abacavir. The test came in good, that is, I am not allergic. The promise that I could take this new pill on an empty stomach was t... he main reason I joined the study, but that hasn't panned out. On empty stomach, this pill almost kills me - I get so sick & nauseous for 3 hours. So even though, this pill keeps me undetectable, it is not easy to use, as I have to take this pill only at night and I have to eat a full meal right before taking it. Needless to say, I am very dissatisfied and I am switching to something else. Read More Read Less
35-44	Female	HIV	3/16/2023	triumeq-oral	166,877	4.666667	5	5	4	Been on it for 8 years. It's kept me undetectable but I have gained weight in an uneven fashion around my mid section. And I stop menstruating completely. Came off it for a few months, was so sick I couldn't get out of bed. And took it right back up and only side effect was I had to have food to take it the first few months or it made me sick. But overall it works.
null	null	HIV	5/21/2019	triumeq-oral	166,877	5	5	5	5	Diagnosed in March â??17 with viral load of 100K and CD4 less than 20. Started Triumeq after doctor tested for any reactions, alongside a suite of prophylactic antibiotics and anti-fungal (Flucanazole). Slight nausea at first, especially if I took all pills together. Within 3 months VL had dropped to 5000 and CD4 climbed up to mid 50s. By end of year one VL was hovering around 50 and CD4 was in the 200-300 range and was able to stop the antibiotics. For some reason I couldnâ??t get to VL u... ndetectable until about 18 months in. Now have been undetectable for last 9 months and CD4 hovers around 300-350. Side-effects are minimal- occasional nausea if I take on an empty stomach. I suspect the drug is facilitating weight gain around my mid-section as I work out frequently and have a hard time keeping weight off. I am considering switching to a newer medication (Jaluca) which only has two active medications instead of three, hopefully will continue to see positive results! Read More Read Less
35-44	Male	HIV	3/13/2019	triumeq-oral	166,877	4.666667	5	4	5	Good treatment no side effect except for appendicitis , few months after start taking the tablet got appendicitis there few similar cases, apart of this no other sides effects first treatment, an year next month , undetectable after 2 months start taking
65-74	Female	HIV	2/28/2019	triumeq-oral	166,877	3.666667	4	4	3	I was first diagnosed with aids 03/99 I had very little side affects from the combinations I was taking then for some reason my medication was change to Triumeq even though my numbers were excellent around 1000 CD4 undetectable viral load now with Triumeq CD4 around 700 to 800 and have put on alot of weight am breathless after walking about 30 ft, level of fatigue is high and I have seemed to have lost the will to do anything, I have been taking this drug about three years I think and wish that ... I had never been given this drug but changing to another would cut my options should drugs become less affective. Read More Read Less
null	null	HIV	11/15/2018	triumeq-oral	166,877	5	5	5	5	I was diagnosed summer of '17. A few days after I got back from vacation actually. Viral load was in the MILLIONS...thank God I hadn't contracted aids. When I first started triumeq I was absolutely miserable, the NAUSEA and EXTREME irritability put quite a strain on my relationship.marijuana and exercise have definitely played a helpful role in lessening the intensity of the side effects. WOULD NOT TRY TAKING AT WORK. Not until you've had a day off to see how you react to it.Absolutley take with... food.sorry not here to scare anyone. So there was a hiccup w my health insurance this last summer and I missed my dosage for a WEEK. Had this not happened I honestly think I would've been unetectable months ago.well Upon yesterday's visit (God Bless AHF dallas) to review my blood work from 1 week a go I am UNDETECTABLE AND STD free! I take my medicine every night , alarm set to 10pm, or my amazing partner will remind me.for the record I have smoked weed almost every night of the last year I have been on triumeq and I am now undetectable! Cutting back on cigarettes has also helped stress tremendously! Read More Read Less
25-34	Female	HIV	1/16/2018	triumeq-oral	166,877	5	5	5	5	i know it is quite soon to write this review but will update as time goes i was diagnosed in 12/17 with hiv and have been on the meds for 5 days now and i have had no side effects and i feel like myself. havent done blood work yet to see if it has helped but sure it has will keep you all updated thx
null	null	HIV	2/24/2017	triumeq-oral	166,877	5	5	5	5	I have been HIV Positive for 32 years, the last drugs I was on was Epzicom and Combivir , a year ago I started Triumeq . In the beginning I experienced sleeplessness, slight nausea and stomach gas. I had to change taking medicine from evenings to mornings to resole the sleeplessness. The side effects I experienced lasted for the first 3 months, but after that period I started feeling somewhat normal. The first positive thing I noticed was my skin became more hydrated and no more skin eruptions.... Now after one year on Triumeq I love this medication and I feel ver close to normal. I have noticed that I have gained a little weight evenly on my body but that is a small price to pay for the way I feel today. If you can tolerate the inital side effects of this med you will be okay in time. My Viral Load is still undetectable and my T-count is 1,150 which is up from 900 . Read More Read Less
25-34	Male	HIV	10/31/2016	triumeq-oral	166,877	5	5	5	5	I started this drug 3 months ago after an HIV/AIDS diagnosis with a viral load of 1.1 million and a CD4 of 14. In the first month my viral load went to 150 and my CD4 went to 76. Getting my next blood results in a couple days, and hopefully both numbers are continuing to improve. Major side effects (severe bone aches) for the first 5 days, but then after that no side effects that I can notice. Worth powering through the side effects as they will subside and this medication is the best on the mar... ket. Read More Read Less
null	null	HIV	8/8/2016	triumeq-oral	166,877	1	1	1	1	Triumeq did not work out for me. I switched to it from a Truvada and Reltegravir combination. Within in days of starting Triumeq I experienced debilitating fatigue and I felt completely drained of energy from morning to night. My sleep was disturbed and I woke each day feeling exhausted before even getting out of bed. I lost my appetite and interest in food and had a constant dry mouth, when I did eat food I felt nauseous. I'm usually fit and active and a keen runner but after starting Triumeq I... would get out of breath just climbing stairs and I lost motivation to exercise. I stuck with them for 2 months but didn't see any improvement within that time. I've now changed back to my previous regimen and I feel back to normal and so much better. I know others who get on fine with Triumeq - you have got to try it for yourself and see how you body responds to it. Read More Read Less
45-54	Male	HIV	6/8/2016	triumeq-oral	166,877	5	5	5	5	Diagnosed with HIV in August 2015. I was given Truvada along with one other drug to bring down initial viral load. After six weeks we switched to Triumeq and my viral load has been undetectable (under 40) ever since. No side effects whatsoever.
null	null	HIV	5/19/2016	triumeq-oral	166,877	5	5	5	5	I was diagnosed on February 11th...viral load a month later in March was 606,000, CD4 count was 508. I started Triumeq on March 30th. I took another blood test on May 17th and received results 2 days later. Viral load is now 50..not 50,000...50!! CD4 count shot up to 900! My doctor was so thrilled that she had to call me even though my follow up appointment with her wasn't for another 2 weeks. This drug has been phenomenal for me! Virtually no side effects. I just take it every morning a... fter breakfast. Read More Read Less
55-64	Male	HIV	4/27/2016	triumeq-oral	166,877	1	1	1	1	Truimeq medication change was a disaster; started with incidents of strange sweating, crotch felt hot, difficulty falling asleep, some cramping in my legs above my knees that I had not experienced before. By the second week began to experience increased muscle cramps. I experienced muscle imbalances in my legs. I experienced joint aches of my hips, knees, ankles, wrists and hands. By third week Neuropathy pain signifcantly worse and I was walking kind of strange from the combination of pain, bur... ning and muscle imbalances in my legs. I was unable to walk or stand for more than 10 minutes without feet burning and hurting and having to sit down. Pain in my wrists and hands all joints and nerve pressure points was constant. I felt discomfort when I urinated in that the nerves in my prostrate and head of my penis felt over stimulated as I urinated. I discontinued Truimeq after 3 weeks and went back on Sustiva/Combivir. My neuropathy pain has become worse as a result of taking this medication. Read More Read Less
45-54	Male	HIV	11/11/2015	triumeq-oral	166,877	1	1	1	1	I am a long term survivor, and I have never had a complication from HIV or any HIV medication. I took the blood test to make sure I was not allergic, and I also did my homework and found many positive reviews. I was basically bedridden for 19 days, and stopped the medication. 2 days later, I ended up in the ER with pancreas complications. In my opinion, they marketed this drug too quickly, and there are too many unknowns about long term use. 1 pill a day is certainly easier, but I regret changin... g my original regimen. Read More Read Less
35-44	Male	HIV	10/21/2015	triumeq-oral	166,877	5	5	5	5	No side effects
55-64	Male	HIV	6/30/2015	triumeq-oral	166,877	5	5	5	5	As a 25-year survivor, I'm been on several regimens--this being the easiest (1 pill) and least side effects. Give it a try if the doc thinks you are a good candidate; be a positive thinker and hope it works.
null	null	HIV	3/3/2015	triumeq-oral	166,877	5	5	5	5	great meds
35-44	Male	HIV	12/4/2014	triumeq-oral	166,877	2.666667	5	2	1	Switched to Triumeq as part of the study switching from 3 pills to 1, and I got hit by all supposedly "infrequent" side effects and severely: severe mood swings, nausea, not feeling well, fatigue, low appetite, low sex drive, tarry stools, the list goes on. On top of that, 3 months into it, I now have anemia. My doctor did the test for potential allergic reaction to abacavir. The test came in good, that is, I am not allergic. The promise that I could take this new pill on an empty stomach was t... he main reason I joined the study, but that hasn't panned out. On empty stomach, this pill almost kills me - I get so sick & nauseous for 3 hours. So even though, this pill keeps me undetectable, it is not easy to use, as I have to take this pill only at night and I have to eat a full meal right before taking it. Needless to say, I am very dissatisfied and I am switching to something else. Read More Read Less
45-54	Male	HIV	1/4/2011	abacavir-lamivudine-zidovudine	20,131	5	5	5	5	I have used this treatment for about 2 weeks now and haven't had any symptoms come back. Thanks for making this 100% working treatment!
45-54	Male	HIV	3/27/2011	abacavir-lamivudine-oral	91,494	5	5	5	5	Initially, I took this drug/medication about two hours before bed, but found that it made me feel slightly quesy. Now I pop it before my shower and teeth clean before bed (15 minutes) and I am usually asleep before any effects kick in. I have spoken to my specialist about this and he says I have taken the correct course of action to alleviate my 'awake' symptoms.
25-34	Male	HIV	11/18/2010	abacavir-lamivudine-oral	91,494	5	5	5	5	this treatment has worked excelent for me and it is very easy to use just 1 pill before bed
35-44	Male	HIV	10/18/2009	abacavir-lamivudine-oral	91,494	1	1	1	1	since starting this medication had most of the side effects i would not recommend this drug .
35-44	Male	HIV	10/14/2008	abacavir-lamivudine-oral	91,494	4.666667	5	5	4	i am taking this medication as part of HIV therapy. i love it! it is so easy to take! it is one of three medications for me, and it is working so well. If you are to begin taking it, the side effects were not too bad for me. i had a "flu" for two days, some levels were adjusted, and not a single problem since. I will say, that I am always hot now. sleeping is a bit of a challenge, especially for my husband.
null	null	HIV	5/3/2008	abacavir-lamivudine-oral	91,494	5	5	5	5	I began Epzicom about a month ago (in conjunction with Kaletra) Frankly I was very uneasy about taking it since the side effects can be so daunting. Of course my doctor tested before I began it. I like just the one dose daily. I had some side effects for about a day (dry heaving) but those disappeared quickly. I think I will always have the deep itching and diarreah (Ii just cannot seem to spell that correctly)but I lost seven dear friends to HIV in the 80's and I am glad there are meds to s... ave my life. I am 74 years old and am not as strong as I formerly was but that could be age!!! Read More Read Less
55-64	Male	HIV	4/17/2008	abacavir-lamivudine-oral	91,494	4.666667	5	5	4	I've been using Epzicom since it was first made available, in conjuntion with Sustiva, and have had undetectable viral load, high CD4 counts and good CD4/CD8 ratio. The convenience of once daily dosing almost outweighs the outrageous, ever-increasing price.
25-34	Male	HIV	3/23/2008	abacavir-lamivudine-oral	91,494	3	2	5	2	started taking it two days ago and having some sideeffects and at the moment not not what to do
null	null	Rheumatoid Arthritis	6/3/2024	orencia-with-maltose-intravenous	94,819	4.666667	4	5	5	I have had several other brands and types of infusions, injections and auto injectors and a couple in daily tablet form. Orencia has. Even the most effective by far of any other and I have had over 10 years of satisfaction with it.
65-74	Male	Other	1/15/2024	orencia-with-maltose-intravenous	94,819	1.333333	2	1	1	During treatment I started to feel very weak and fatigued. After 3rd infusion I developed serious side effects and had to stop. I developed a kidney infection, my immune system crashed and I became very ill with right flank pain. Waiting for Orencia to finally wash out of my system.
45-54	Female	Rheumatoid Arthritis	1/4/2024	orencia-with-maltose-intravenous	94,819	2.666667	2	5	1	Since being on this medication I have had bronchitis twice, enlarged tonsils with snoring, facial nodules weekly post injection, UTI x2 and my back went out. I did not experience any hair loss or weight gain that I can attribute to this medication. My side effects was diarrhea day 1 after injection and fatigue.
65-74	Female	Rheumatoid Arthritis	8/3/2023	orencia-with-maltose-intravenous	94,819	5	5	5	5	I was diagnosed with RA when I was 28 yr old & prescribed aspirin & cortisone. I started Orencia IV infusions in 2005. It has been the best medicine. It stopped the joint degeneration. I have been in remission for 18 years. The cost has tripled in price since I've started it & may have to stop due to out-of-pocket expense becoming a burden.
55-64	Female	Rheumatoid Arthritis	10/9/2022	orencia-with-maltose-intravenous	94,819	1.666667	1	3	1	This medication nearly resulted in the death of my spouse because of severe side effects. She experienced severe fatigue, fever, and diarrhea before going to the emergency room. She was admitted and after multiple days of testing and consultation with many doctors, it was determined that Orencia triggered pneumonia and nearly fatal intestinal infection. She spent more than one week in the hospital and is on a slow road to recovery with no understanding of long-term effects. Please be mindful... as this occurred after her third injection. Read More Read Less
45-54	Female	Rheumatoid Arthritis	4/14/2022	orencia-with-maltose-intravenous	94,819	1	1	1	1	I did my first injection and started having an allergic reaction less than 5 minutes later. Facial flushing, severe dizziness, nausea, itching and swelling of the pallate, my evtire mouth went numb, shortness of breath. 2 rounds of Epi, 100mg of benedryl and 2 hours later I was able to stand. 24 hours later I had a milder reaction. Drug is still in my system so I’m keeping benedryl in me and an Epi pen close by.
null	null	Rheumatoid Arthritis	5/22/2020	orencia-with-maltose-intravenous	94,819	2.666667	3	3	2	Worked for a little while at first. After seven months. I feel it has failed me As a 6000 dollar price tag, it's not worth it. Need something ekse.
55-64	Female	Rheumatoid Arthritis	8/15/2019	orencia-with-maltose-intravenous	94,819	1	1	1	1	I have not used it yet!!
55-64	Female	Rheumatoid Arthritis	7/26/2019	orencia-with-maltose-intravenous	94,819	3.333333	3	4	3	At first after the 2 months I felt great then the 3rd month pain returned and have been loosing alot of hair and am not sure if it will come back. Wish they manufacturer would explain this as a side affect and how to treat it.
65-74	Female	Rheumatoid Arthritis	1/19/2019	orencia-with-maltose-intravenous	94,819	5	5	5	5	It took 3 months before it started working. According to their info, it can take up to 6 months to work. I had no problem using the Click-Jet injector. Once the medicine kicked in, I could move easily and without pain, and was able to cut down the pain meds.
45-54	Female	Rheumatoid Arthritis	4/16/2018	orencia-with-maltose-intravenous	94,819	5	5	5	5	I was diagnosed about 16 years ago and have tried at least 12 drugs. Nothing lasted very long until Orencia. I have been receiving infusion for about a year and I feel better than I have in years. This drug has helped me have a life again!
null	null	Chronic Joint Inflammatory Disease in Children and Young Adults of Unknown Cause	3/20/2018	orencia-with-maltose-intravenous	94,819	5	5	5	5	I have suffered with psoriatic arthritis for over 15 years bi used Enbrel until I got on Medicare then I could not afford that drug. I tried Remicaid for 10 months but was allergic to it bafter suffering for 3 years Orencia is working for me. I am so grateful. I am sorry for those still suffering. Try another infusion it may work.
null	null	Rheumatoid Arthritis	3/14/2018	orencia-with-maltose-intravenous	94,819	4	4	4	4	I have tried numerous Biologics and finally went on Orencia. Finally at the 7 mo mark it started to work, however my doc had just switched me to Acterma infusions. I was on the infusions for5 months and was having horrible night sweats and not sleeping, so switched back to Orencia. After about 2 months I was able to back off the methypred and no longer taking. I do have pain but it is better. I had no side affects to this med.
65-74	Female	Rheumatoid Arthritis	12/2/2017	orencia-with-maltose-intravenous	94,819	5	5	5	5	I have had a great response to this medication, and the staff who administers it is so good. They explain everything, and I am looking forward to it's continued use, as it has had such a profound effect on me.
null	null	Rheumatoid Arthritis	11/14/2017	orencia-with-maltose-intravenous	94,819	1	1	1	1	I think I've been on this for at least six months. Fuzzy thinking, tired, depressed, flu symptoms. Not sure it is helping. Will definitely ask for a new drug/new idea in December when I see my Rheumo Doc.
55-64	Female	Rheumatoid Arthritis	10/15/2017	orencia-with-maltose-intravenous	94,819	2	1	4	1	I had the worse experience with this Orencia medicine. I kept waiting for the six months that They said it takes to work. In the process, I got worse than ever . It not only didn't work but made me worse. I was so mad that I waited so long in vain. I will never try another medication that supposedly take that long to work.
55-64	Female	Other	7/15/2017	orencia-with-maltose-intravenous	94,819	3.666667	4	3	4	Monthly infusion worked well, however due to medical complications had to come off due to onset of cervical issues.
null	null	Rheumatoid Arthritis	6/10/2017	orencia-with-maltose-intravenous	94,819	1	1	1	1	I have been on Orencia (3 months) and Methotrexate (2 years). This past couple weeks I have felt horrible. Depressed, flu like symptoms, tired, sore throat and heavy breathing. I have been tring to figure out what is wrong. When I seen this page I felt better that I am not the only one. I am wondering how long this is going to last? Can't wait until Orencia is OUT of my systems!
null	null	Rheumatoid Arthritis	3/12/2017	orencia-with-maltose-intravenous	94,819	1	1	1	1	Started 2 months ago. First time blood pressure dropped dangerously low, felt terrible. Helped my joint swelling somewhat. Second time again felt terrible, pain in lower back, legs, nausea, diatthea, headache, went back to doctor, who said he thought I had fibromyalgia. Waiting to get in to g.p. Don't think I wat to take it anymore
19-24	Female	Rheumatoid Arthritis	1/13/2017	orencia-with-maltose-intravenous	94,819	3.666667	3	5	3	I have been on Orencia for roughly a year now- I have noticed an on going flu like symptom (stuffy nose, sore throat, etc.) and have noticed recently this drug has not been working as long as it has when I first started it. I take my injection on Saturdays- I have relief until Wednesday then my body flares up again. It is a good few month drug, this drug will eventually stop working for you.
null	null	Rheumatoid Arthritis	1/8/2017	orencia-with-maltose-intravenous	94,819	2	2	2	2	I've taken Orencia for about a year and a half.During this time, my hands and feet have continually worsened, and I also have hip pain, which I did n't have before. My back and knees remain about the same. I'm 57 and have had arthritis for about 20 years, so I'm not expecting miracles, but expected a better result, since I go to the gym 5 times a week to try to support my joints. I take plaquenil, methotrexate, prednisone,and meloxicam in addition to Orencia.
45-54	Female	Rheumatoid Arthritis	8/10/2016	orencia-with-maltose-intravenous	94,819	1	1	1	1	so far I still have pain
55-64	Female	Rheumatoid Arthritis	5/26/2016	orencia-with-maltose-intravenous	94,819	2	1	4	1	I received Orencia IV for seven months without any improvement in my RA symptoms.
45-54	Female	Rheumatoid Arthritis	1/14/2016	orencia-with-maltose-intravenous	94,819	4.666667	5	5	4	I like that it helps prevent flare ups but I don't like feeling sick alot
19-24	Female	Rheumatoid Arthritis	7/24/2015	orencia-with-maltose-intravenous	94,819	2.666667	2	4	2	I've been on Orencia for over a year now. It seemed to work well at first, but now the pain is getting worse and worse each day. This medication does not help with pain, unless combined with another medication (such as methotrexate) from what I've heard. The side effects of Orencia that I've noticed are: weight gain and trouble breathing (e.g., heavy breathing after walking up a few steps)...I am an active person. Please speak with your doctor to see what other drugs Orencia can be combined with... to increase its effectiveness. Read More Read Less
25-34	Female	Rheumatoid Arthritis	7/15/2015	orencia-with-maltose-intravenous	94,819	4.333333	4	5	4	Orencia took about 7 months to start working and I had to go off Humira for a month before so I was really struggling then one day BOOM! I felt amazing. My kankles turned to ankles and my overall health started to improve. I have not experienced any side effects (that I'm aware of as you may know having RA can make you less in tune with your body but nothing major)
45-54	Male	Rheumatoid Arthritis	7/6/2015	orencia-with-maltose-intravenous	94,819	4	4	4	4	Took Orencia IV for a little over a year and it worked good. Was diagnosed with bladder cancer 2 months ago and am waiting results of the biopsy after my treatment.I am not saying the treatments caused it but I typed in Orencia and Bladder Cancer and there is a small percent of people that have got Bladder cancer after taking the Orencia treatments.Plan on returning to Humira which was a little less effective than Orencia.
65-74	Female	Rheumatoid Arthritis	6/19/2015	orencia-with-maltose-intravenous	94,819	3.333333	3	4	3	Have been on Orencia since Oct 2014 and do not find it that effective. After having injection within 3-4 days I am hurting. Since starting this drug, I have lost 15-18 lbs which I am not happy about. Humira had worked great until I had bleeding from the bowels and my Dr. switched me to Oencia. She is going to add methotrexate to see if that will help boost the med. Actemra had also been good until it started to affect my blood work. Suppose next step will be onto another one. I don't think I'l... l try remicaid as my daughter had been taking it for her crohn's and ended up with drug enduced Lupis. Read More Read Less
55-64	Female	Rheumatoid Arthritis	5/14/2015	orencia-with-maltose-intravenous	94,819	3.333333	3	4	3	Large joints are better. Hands, feet not so much. Have gained about a pound a month on this drug even as I watch my diet. A cost of over 48,000 dollars a year seems excessive for the results
55-64	Female	Rheumatoid Arthritis	3/6/2015	orencia-with-maltose-intravenous	94,819	2.666667	2	5	1	BETTER THAN NOTHING, BUT NOT GREAT
45-54	Female	Rheumatoid Arthritis	12/14/2014	orencia-with-maltose-intravenous	94,819	4.333333	4	5	4	Have taken for over 3 years. It has been wonderful with no side effects at all. However, over the past six months it has gradually lost effectiveness. Most likely about to change since this is the only biologic in its class.
45-54	Female	Rheumatoid Arthritis	7/15/2014	orencia-with-maltose-intravenous	94,819	4.666667	5	5	4	I started weekly Orencia injections 3 months ago. After 6 weeks, I felt great with joint swelling and pain significantly reduced. Thought I may be going into remission. After 8 weeks of injections I experienced extreme fatigue which remains unabated. I sleep 8-9 hours every night and take 1 1/2 hour naps in the afternoons. My level of fatigue has worsened while taking Orencia but the joints feel good. Hoping to balance feeling decently energetic and relatively pain-free while on Orencia. ... Read More Read Less
55-64	Female	Rheumatoid Arthritis	7/6/2014	orencia-with-maltose-intravenous	94,819	1.666667	1	3	1	No one told me I needed two separate payment assistant cards (one for IV and one for self injections) so Orencia never paid Aetna Pharmacy for the copay portion. I have been dealing with thi bill for almost a year. I have only been given the run-around by staff of Orencia and Aetna Specialty Pharmacy. I tried Orencia through IV and self-injections in which both made my RA condition even worst. It's bad enough they are hounding me for the co-pay of $281 (I did pay the remaining balaance) bu... t it's hard to pay for a drug that made my RA worst. Read More Read Less
35-44	Female	Rheumatoid Arthritis	6/4/2014	orencia-with-maltose-intravenous	94,819	2.333333	1	5	1	I tried Orencia for the first time last Friday via self-inject and I have not felt well since. The day after the injection I was bed-ridden for 2 days unable to get up and move around. When I did, I was out of breath. I could not concentrate and even today, 5 days letter, my brain feels fuzzy. This is my 4th biological drug. I am 35 years old, diagnosed with RA in 1994. Humira worked well for 6 years then stopped, Enbrel for a year and Remicade not at all. All of these drugs give me severe fatig... ue for days after use. Seeing as Orenica is weekly, I cannot afford to be bedridden for days at a time each week. My doctor says that she has never heard of such reactions, so now I have to start something new altogether. I'm so tired of physicians telling us all that "they have never heard of (insert symptom) that reaction in other patients"- yet here we all are discussing various symptoms such as weight gain, depression, fatigue. I'm frustrated and at my wits end. My disease is severe and active, I've been off work almost 2 years, had joint replacement on my right shoulder and I'm terrified on my future with this disease. Anyone else experience extreme fatigue for days after treatments with biologics? Thank you for your reviews and feedback, makes me feel like I'm not the only one. I hope all of us find relief in the coming days. Kristy Read More Read Less
55-64	Male	Rheumatoid Arthritis	5/7/2014	orencia-with-maltose-intravenous	94,819	5	5	5	5	Works well.
55-64	Female	Rheumatoid Arthritis	2/11/2014	orencia-with-maltose-intravenous	94,819	2.666667	2	4	2	The only thing I can tell it may help sometime is the fatigue I feel. It hasn't slowed down my joint pain or swelling.
65-74	Female	Rheumatoid Arthritis	1/7/2014	orencia-with-maltose-intravenous	94,819	1	1	1	1	This medicine took my lungs. Very dangerious medicine. RA was bad enough but now I have no breath after walking a short distance. I can not lift things or exercise. Soon after it started, I told my doctor I could not bring my groceries inside to my kitchen without being short of breath. Finally he took me off and now I noticed a disclaimer about COPD on the side effects of the new packaging. Don't take this drug. My life will never by the same.
55-64	Female	Rheumatoid Arthritis	12/17/2013	orencia-with-maltose-intravenous	94,819	3	3	3	3	Have had RA for more than 20 years but since menopause it became much worse. Have used Enbrel and Humara Methotraxate etc. Methotraxate created liver issues and Enbrel worked well for more than 5 years. Orencia IV worked great for 2 years; the shots did not work. Now it is no longer working so we are going to a different drug hoping something else will work.
45-54	Female	Rheumatoid Arthritis	9/21/2013	orencia-with-maltose-intravenous	94,819	2.333333	1	5	1	The self managing syringe is less painful than the forceful pen injections. Icing the area prior to injecting made it easier. After the first injection, I came down with an upper respiratory infection where I could barely talk. After treating the infection, I restarted the injections and noticed week by week that I was gaining weight. I did experience an increase in head, face & jaw pain as well as an increase in fatigue, the sweats & an overall sick feeling. My lymph nodes were swelled up und... er my neck, behind my neck, under my jaw and in both armpits. They also were very painful and my overall joint & muscle pain increased quite a bit. My blood pressure was also very high, my throat was sore and my face was puffy. Some of my liver enzymes were high. My Rheumy believed it was just a side effect of the Prednisone and the Cymbalta but I decided to go to my PCP regarding swollen lymph nodes. Blood tests showed that I was positive for CMV Infection (Cytomegalovirus similar to Mononucleosis) which explains the swollen glands, sore throat, high blood pressure and hot sweats. It helps to have a sharp PCP looking at the bigger picture! I am still waiting for the results on the CT scan of the lymph nodes. I do have a history of Mono/Epstein-Barr virus and I have Fibromyalgia. By taking an immunity suppressant drug such as Orencia be aware that you run the risk of pickup any kind of bug from anyone regardless how careful you might be or activating an old acquaintances including Shingles. There is no medicine for CMV and recovery could take up to a year. Read More Read Less
55-64	Female	Rheumatoid Arthritis	9/19/2013	orencia-with-maltose-intravenous	94,819	4.333333	5	3	5	I have been battling with this for about 10 years now..this has been the best product I have used. I also don't like the weight gain..but it's nice to not be swollen and in pain all the time. I still have flair ups, but it's well worth it.
55-64	Female	Rheumatoid Arthritis	9/4/2013	orencia-with-maltose-intravenous	94,819	5	5	5	5	After having a serious rejection to Embrel my doctor switched me to Orencia. I was off meds for 8 weeks before starting so it took approx. 3 mos for Orencia to calm by condition. I love it. It's convenient except for the order by phone now and specialty pharmacies limit me to 1 box a month. Sometimes they do not get my medicine to me on time and I get 2-3 weeks behind (even with private insurance) What to do?
55-64	Male	Rheumatoid Arthritis	7/31/2013	orencia-with-maltose-intravenous	94,819	4	4	4	4	This miedication took approximtely 1 month until I felt full effect. I have been on 6 moths with minor side affects.
55-64	Female	Rheumatoid Arthritis	7/26/2013	orencia-with-maltose-intravenous	94,819	2.333333	3	2	2	I have had RA for 2 yrs now. On Orencia for a little over 12 mos. The weight gain is very distressing. I also have a terrible time with nausea and fatigue.
25-34	Female	Rheumatoid Arthritis	6/10/2013	orencia-with-maltose-intravenous	94,819	5	5	5	5	I was diagnosed with RA at 15 years old, I'm now 27, and my disease is very severe. I tried methotrexate and Enbrel and they were ineffective, Remicade worked okay for a couple years and then failed. I've been on Orencia for close to 7 years now and for me it is a miracle drug. I very rarely have any pain, stiffness or joint swelling. I now use the subcutaneous injections and they are just as effective as IV and much more convenient. I don't know what I would do if I did not have this drug.... With it, I am able to lead a normal active lifestyle. Read More Read Less
55-64	Female	Rheumatoid Arthritis	5/23/2013	orencia-with-maltose-intravenous	94,819	3.333333	3	4	3	I am 57 and have had RA since I was 21. Methx worked well for many years, but finally had to proceed on to Enbrel. LOVED Enbrel for 7 yrs., then on to Remicade. It didn't help at all; Rituxin was great for 3 yrs. but I had to make the decision to go up to 3 times per year instead of 2, and I just can't feel good about that, considering the dreadful possible side effects. Orencia is just ok....not a big difference in my condition, so I will talk to my dr. again to see what else is out there. ... Ugh, it's time for another giant step in RA treatment, don't you think? Read More Read Less
45-54	Female	Rheumatoid Arthritis	4/2/2013	orencia-with-maltose-intravenous	94,819	3	3	4	2	RA diagnosed 10 years ago. Tried most of the drugs. Orencia most effective, however, still get occasional flares. Main problem for me is getting multiple mouth sores within 24-48 hours after getting the IV. Very painful, very hard to treat and get rid of.
65-74	Female	Rheumatoid Arthritis	3/25/2013	orencia-with-maltose-intravenous	94,819	5	5	5	5	I have been on a combination of Orencia, mobic and prednisone for over two years. I had to discontinue the infusions because I got basal cell skin cancers on my face and arms. I did research and after taking pprednisone over five years about 60% of people will get basal cell skin cancer.I had surgeries so had to discontinue the infusions. Terrible to go off Orencia. I miss it so much. It helped me tremendously. I was able to cut way back on the other two drugs which cause stomach problems, catar... acts, high blood pressure and possibly diabetes. While taking Orencia I had much less fatigue and stiffness in joints. In fact joints felt stronger. Now get pains in arms, wrists, hands, feet. And kness feel like they might actually cave in. Twice I had bad reactions, migraine headache and dizziness. Now they give a 15 minute flush after the IV Orencia. They also start me off with 1000 mg of tylenol & two benadryl.That was the original procedure but the health care professionals didn't adhere to that original protocol. Most people didnt have reactions so of course why spend all that additional time and money for the additional procedure. Can't wait to go back on Orencia again. At times it was like I didn't even have RA. I am 70 years old and it has helped me commute to and hold down a full-time job in a big city. Also I am able to manuever thru an airport and get on a plane and take a few trips a year. I don't feel like I am old and done with. It gave me back my life. Read More Read Less
null	null	Rheumatoid Arthritis	3/20/2013	orencia-with-maltose-intravenous	94,819	3.666667	4	3	4	have dad some recations
45-54	Female	Rheumatoid Arthritis	1/17/2013	orencia-with-maltose-intravenous	94,819	3	4	4	1	This is a horrible drug, everytime I took it I landed up in the hospital with some kind of respiratory infection. I wish I had never taken this medication. Please do your research first. I did research, but only about its effectiveness. I want to be around for my sons kids-will never take this again,
null	null	Rheumatoid Arthritis	1/8/2013	orencia-with-maltose-intravenous	94,819	1	1	1	1	My daughter could not take Enbrel. It actually made her worse. Her joints would lock up and get very stiff if she took it. Now, Orencia is doing the same thing. Doctor wants to try one more time, but my daughter stays active and is afraid she won't be able to play basketball for the rest of the season, because now her wrists and shoulders are locking up and feel like they are broken and can't move. Her bottom lip swells each time, and she always has itching. Doctor knows all this, but can someth... ing that makes her worse turn around and make her better? Need advice... Read More Read Less
35-44	Female	Rheumatoid Arthritis	12/24/2012	orencia-with-maltose-intravenous	94,819	4	5	5	2	I have been on Orencia for 3 years and it has helped the RA symptoms greatly. My energy level is much better than it was before. My only complaint is that I have gone from 115 pounds to 135 pounds in those 3 years. I am a very small woman and I find this weight gain very upsetting. I am exercising more and eating less, but my weight continues to climb. My doctor refuses to believe the Orencia is causing this gain, but I see by other reviews, I'm not the only one. My doc told me I can go back on... methotrexate or try another biological. I'm not sure what to do?! Read More Read Less
55-64	Male	Rheumatoid Arthritis	12/10/2012	orencia-with-maltose-intravenous	94,819	1.333333	1	2	1	have`t seen any difference
45-54	Female	Rheumatoid Arthritis	12/2/2012	orencia-with-maltose-intravenous	94,819	1.333333	1	2	1	Wrote first review on 8/25/12 (right before 4th dose)and nothing has changed.......this drug for me has been awful and dangerous and I will not take it again! Tried to give it time, but during latest dose (my 6th), my blood pressure shot up and I felt like I was having a stroke. Could not get rid of headache with tylenol and ibuprofen. Had to stay and be monitored for extra hour until it returned to normanl. Next day, knee swelled to twice it's size and stayed that way for 3 days. I felt fi... ne prior to receiving my infusion and like I was on death's door halfway thru. Enough! I know the inflammation is dangerous, but I just can't play guinea pig anymore. I am done trying these new meds! Good bye Orencia! I have had adverse reactions to too many of these "man made" chemicals to last a thousand life times, including a bout with Steven's Johnson's. Serious note: one never knows if meds will work unless they are tried. I am just tired right now of trying new ones and the consequences or side effects of them. If they work for any of you, be grateful and I am truly happy for you. I believe we should listen to our bodies as we know them best and ultimately do what one feels is best for them at that given time. Read More Read Less
65-74	Female	Rheumatoid Arthritis	11/3/2012	orencia-with-maltose-intravenous	94,819	2	3	1	2	Have had to reschedule IV twice because of infections. Been on Orencia for 10 mo. After each infusion my DEPRESSION gets worse. I am going to have to stop the med even tho it helps with swelling and pain. "Choose your poison."

null

Other

4/14/2012

abacavir-oral

16,830

4.333333

5

3

this is a test

null

HIV

10/24/2010

abacavir-oral

16,830

1

Broke out in a mass of open sores, Dr. would not change as he stated I would get use to it. Quite drug after 6 mos went bach on drugs I was previously on.

45-54

Male

HIV

7/30/2008

abacavir-oral

16,830

2.666667

5

1

2

Took Ziagen in combination with Combivir for 6 1/2 years. Although it kept my viral load undetectable and t-cell count under control, the stomach problems and nausea were awful. Right along this combo, I took Prevacid to ease these side effects, hower the nausea didn't go away until I stopped taking this combination. I am now on Truvada and Reyataz: feel like I'm born again! The side effects will stop once you stop taking the med. Empower yourself and tell your doctor you insist on a change... of combination, especially if you are undetectable as you can always go back to the medication because you will not have developed resistance to it. Read More Read Less

45-54

Male

HIV

7/15/2008

abacavir-oral

16,830

3.666667

5

3

I am undetectable so that alone is Great News. I am however experiancing diffaculty breathing ever sense I started this medicine. Its been a couple years now but the breathing has not got any better. whats the worst of the 2 evils ??? also have stomach issues and sores in the mouth that I believe are reaction to this drug. all in all, I guess I am Healthy . My doctor does not seem to think that it warents taking me off this med so I have to deal with it.

35-44

Female

HIV

3/16/2023

triumeq-oral

166,877

4.666667

5

4

Been on it for 8 years. It's kept me undetectable but I have gained weight in an uneven fashion around my mid section. And I stop menstruating completely. Came off it for a few months, was so sick I couldn't get out of bed. And took it right back up and only side effect was I had to have food to take it the first few months or it made me sick. But overall it works.

null

HIV

5/21/2019

triumeq-oral

166,877

5

Diagnosed in March â??17 with viral load of 100K and CD4 less than 20. Started Triumeq after doctor tested for any reactions, alongside a suite of prophylactic antibiotics and anti-fungal (Flucanazole). Slight nausea at first, especially if I took all pills together. Within 3 months VL had dropped to 5000 and CD4 climbed up to mid 50s. By end of year one VL was hovering around 50 and CD4 was in the 200-300 range and was able to stop the antibiotics. For some reason I couldnâ??t get to VL u... ndetectable until about 18 months in. Now have been undetectable for last 9 months and CD4 hovers around 300-350. Side-effects are minimal- occasional nausea if I take on an empty stomach. I suspect the drug is facilitating weight gain around my mid-section as I work out frequently and have a hard time keeping weight off. I am considering switching to a newer medication (Jaluca) which only has two active medications instead of three, hopefully will continue to see positive results! Read More Read Less

35-44

Male

HIV

3/13/2019

triumeq-oral

166,877

4.666667

5

4

5

Good treatment no side effect except for appendicitis , few months after start taking the tablet got appendicitis there few similar cases, apart of this no other sides effects first treatment, an year next month , undetectable after 2 months start taking

65-74

Female

HIV

2/28/2019

triumeq-oral

166,877

3.666667

4

3

I was first diagnosed with aids 03/99 I had very little side affects from the combinations I was taking then for some reason my medication was change to Triumeq even though my numbers were excellent around 1000 CD4 undetectable viral load now with Triumeq CD4 around 700 to 800 and have put on alot of weight am breathless after walking about 30 ft, level of fatigue is high and I have seemed to have lost the will to do anything, I have been taking this drug about three years I think and wish that ... I had never been given this drug but changing to another would cut my options should drugs become less affective. Read More Read Less

null

HIV

11/15/2018

triumeq-oral

166,877

5

I was diagnosed summer of '17. A few days after I got back from vacation actually. Viral load was in the MILLIONS...thank God I hadn't contracted aids. When I first started triumeq I was absolutely miserable, the NAUSEA and EXTREME irritability put quite a strain on my relationship.marijuana and exercise have definitely played a helpful role in lessening the intensity of the side effects. WOULD NOT TRY TAKING AT WORK. Not until you've had a day off to see how you react to it.Absolutley take with... food.sorry not here to scare anyone. So there was a hiccup w my health insurance this last summer and I missed my dosage for a WEEK. Had this not happened I honestly think I would've been unetectable months ago.well Upon yesterday's visit (God Bless AHF dallas) to review my blood work from 1 week a go I am UNDETECTABLE AND STD free! I take my medicine every night , alarm set to 10pm, or my amazing partner will remind me.for the record I have smoked weed almost every night of the last year I have been on triumeq and I am now undetectable! Cutting back on cigarettes has also helped stress tremendously! Read More Read Less

25-34

Female

HIV

1/16/2018

triumeq-oral

166,877

5

i know it is quite soon to write this review but will update as time goes i was diagnosed in 12/17 with hiv and have been on the meds for 5 days now and i have had no side effects and i feel like myself. havent done blood work yet to see if it has helped but sure it has will keep you all updated thx

null

HIV

2/24/2017

triumeq-oral

166,877

5

I have been HIV Positive for 32 years, the last drugs I was on was Epzicom and Combivir , a year ago I started Triumeq . In the beginning I experienced sleeplessness, slight nausea and stomach gas. I had to change taking medicine from evenings to mornings to resole the sleeplessness. The side effects I experienced lasted for the first 3 months, but after that period I started feeling somewhat normal. The first positive thing I noticed was my skin became more hydrated and no more skin eruptions.... Now after one year on Triumeq I love this medication and I feel ver close to normal. I have noticed that I have gained a little weight evenly on my body but that is a small price to pay for the way I feel today. If you can tolerate the inital side effects of this med you will be okay in time. My Viral Load is still undetectable and my T-count is 1,150 which is up from 900 . Read More Read Less

25-34

Male

HIV

10/31/2016

triumeq-oral

166,877

5

I started this drug 3 months ago after an HIV/AIDS diagnosis with a viral load of 1.1 million and a CD4 of 14. In the first month my viral load went to 150 and my CD4 went to 76. Getting my next blood results in a couple days, and hopefully both numbers are continuing to improve. Major side effects (severe bone aches) for the first 5 days, but then after that no side effects that I can notice. Worth powering through the side effects as they will subside and this medication is the best on the mar... ket. Read More Read Less

null

HIV

8/8/2016

triumeq-oral

166,877

1

Triumeq did not work out for me. I switched to it from a Truvada and Reltegravir combination. Within in days of starting Triumeq I experienced debilitating fatigue and I felt completely drained of energy from morning to night. My sleep was disturbed and I woke each day feeling exhausted before even getting out of bed. I lost my appetite and interest in food and had a constant dry mouth, when I did eat food I felt nauseous. I'm usually fit and active and a keen runner but after starting Triumeq I... would get out of breath just climbing stairs and I lost motivation to exercise. I stuck with them for 2 months but didn't see any improvement within that time. I've now changed back to my previous regimen and I feel back to normal and so much better. I know others who get on fine with Triumeq - you have got to try it for yourself and see how you body responds to it. Read More Read Less

45-54

Male

HIV

6/8/2016

triumeq-oral

166,877

5

Diagnosed with HIV in August 2015. I was given Truvada along with one other drug to bring down initial viral load. After six weeks we switched to Triumeq and my viral load has been undetectable (under 40) ever since. No side effects whatsoever.

null

HIV

5/19/2016

triumeq-oral

166,877

5

I was diagnosed on February 11th...viral load a month later in March was 606,000, CD4 count was 508. I started Triumeq on March 30th. I took another blood test on May 17th and received results 2 days later. Viral load is now 50..not 50,000...50!! CD4 count shot up to 900! My doctor was so thrilled that she had to call me even though my follow up appointment with her wasn't for another 2 weeks. This drug has been phenomenal for me! Virtually no side effects. I just take it every morning a... fter breakfast. Read More Read Less

55-64

Male

HIV

4/27/2016

triumeq-oral

166,877

1

Truimeq medication change was a disaster; started with incidents of strange sweating, crotch felt hot, difficulty falling asleep, some cramping in my legs above my knees that I had not experienced before. By the second week began to experience increased muscle cramps. I experienced muscle imbalances in my legs. I experienced joint aches of my hips, knees, ankles, wrists and hands. By third week Neuropathy pain signifcantly worse and I was walking kind of strange from the combination of pain, bur... ning and muscle imbalances in my legs. I was unable to walk or stand for more than 10 minutes without feet burning and hurting and having to sit down. Pain in my wrists and hands all joints and nerve pressure points was constant. I felt discomfort when I urinated in that the nerves in my prostrate and head of my penis felt over stimulated as I urinated. I discontinued Truimeq after 3 weeks and went back on Sustiva/Combivir. My neuropathy pain has become worse as a result of taking this medication. Read More Read Less

45-54

Male

HIV

11/11/2015

triumeq-oral

166,877

1

I am a long term survivor, and I have never had a complication from HIV or any HIV medication. I took the blood test to make sure I was not allergic, and I also did my homework and found many positive reviews. I was basically bedridden for 19 days, and stopped the medication. 2 days later, I ended up in the ER with pancreas complications. In my opinion, they marketed this drug too quickly, and there are too many unknowns about long term use. 1 pill a day is certainly easier, but I regret changin... g my original regimen. Read More Read Less

35-44

Male

HIV

10/21/2015

triumeq-oral

166,877

5

No side effects

55-64

Male

HIV

6/30/2015

triumeq-oral

166,877

5

As a 25-year survivor, I'm been on several regimens--this being the easiest (1 pill) and least side effects. Give it a try if the doc thinks you are a good candidate; be a positive thinker and hope it works.

null

HIV

3/3/2015

triumeq-oral

166,877

5

great meds

35-44

Male

HIV

12/4/2014

triumeq-oral

166,877

2.666667

5

2

1

Switched to Triumeq as part of the study switching from 3 pills to 1, and I got hit by all supposedly "infrequent" side effects and severely: severe mood swings, nausea, not feeling well, fatigue, low appetite, low sex drive, tarry stools, the list goes on. On top of that, 3 months into it, I now have anemia. My doctor did the test for potential allergic reaction to abacavir. The test came in good, that is, I am not allergic. The promise that I could take this new pill on an empty stomach was t... he main reason I joined the study, but that hasn't panned out. On empty stomach, this pill almost kills me - I get so sick & nauseous for 3 hours. So even though, this pill keeps me undetectable, it is not easy to use, as I have to take this pill only at night and I have to eat a full meal right before taking it. Needless to say, I am very dissatisfied and I am switching to something else. Read More Read Less

35-44

Female

HIV

3/16/2023

triumeq-oral

166,877

4.666667

5

4

Been on it for 8 years. It's kept me undetectable but I have gained weight in an uneven fashion around my mid section. And I stop menstruating completely. Came off it for a few months, was so sick I couldn't get out of bed. And took it right back up and only side effect was I had to have food to take it the first few months or it made me sick. But overall it works.

null

HIV

5/21/2019

triumeq-oral

166,877

5

Diagnosed in March â??17 with viral load of 100K and CD4 less than 20. Started Triumeq after doctor tested for any reactions, alongside a suite of prophylactic antibiotics and anti-fungal (Flucanazole). Slight nausea at first, especially if I took all pills together. Within 3 months VL had dropped to 5000 and CD4 climbed up to mid 50s. By end of year one VL was hovering around 50 and CD4 was in the 200-300 range and was able to stop the antibiotics. For some reason I couldnâ??t get to VL u... ndetectable until about 18 months in. Now have been undetectable for last 9 months and CD4 hovers around 300-350. Side-effects are minimal- occasional nausea if I take on an empty stomach. I suspect the drug is facilitating weight gain around my mid-section as I work out frequently and have a hard time keeping weight off. I am considering switching to a newer medication (Jaluca) which only has two active medications instead of three, hopefully will continue to see positive results! Read More Read Less

35-44

Male

HIV

3/13/2019

triumeq-oral

166,877

4.666667

5

4

5

Good treatment no side effect except for appendicitis , few months after start taking the tablet got appendicitis there few similar cases, apart of this no other sides effects first treatment, an year next month , undetectable after 2 months start taking

65-74

Female

HIV

2/28/2019

triumeq-oral

166,877

3.666667

4

3

I was first diagnosed with aids 03/99 I had very little side affects from the combinations I was taking then for some reason my medication was change to Triumeq even though my numbers were excellent around 1000 CD4 undetectable viral load now with Triumeq CD4 around 700 to 800 and have put on alot of weight am breathless after walking about 30 ft, level of fatigue is high and I have seemed to have lost the will to do anything, I have been taking this drug about three years I think and wish that ... I had never been given this drug but changing to another would cut my options should drugs become less affective. Read More Read Less

null

HIV

11/15/2018

triumeq-oral

166,877

5

I was diagnosed summer of '17. A few days after I got back from vacation actually. Viral load was in the MILLIONS...thank God I hadn't contracted aids. When I first started triumeq I was absolutely miserable, the NAUSEA and EXTREME irritability put quite a strain on my relationship.marijuana and exercise have definitely played a helpful role in lessening the intensity of the side effects. WOULD NOT TRY TAKING AT WORK. Not until you've had a day off to see how you react to it.Absolutley take with... food.sorry not here to scare anyone. So there was a hiccup w my health insurance this last summer and I missed my dosage for a WEEK. Had this not happened I honestly think I would've been unetectable months ago.well Upon yesterday's visit (God Bless AHF dallas) to review my blood work from 1 week a go I am UNDETECTABLE AND STD free! I take my medicine every night , alarm set to 10pm, or my amazing partner will remind me.for the record I have smoked weed almost every night of the last year I have been on triumeq and I am now undetectable! Cutting back on cigarettes has also helped stress tremendously! Read More Read Less

25-34

Female

HIV

1/16/2018

triumeq-oral

166,877

5

i know it is quite soon to write this review but will update as time goes i was diagnosed in 12/17 with hiv and have been on the meds for 5 days now and i have had no side effects and i feel like myself. havent done blood work yet to see if it has helped but sure it has will keep you all updated thx

null

HIV

2/24/2017

triumeq-oral

166,877

5

I have been HIV Positive for 32 years, the last drugs I was on was Epzicom and Combivir , a year ago I started Triumeq . In the beginning I experienced sleeplessness, slight nausea and stomach gas. I had to change taking medicine from evenings to mornings to resole the sleeplessness. The side effects I experienced lasted for the first 3 months, but after that period I started feeling somewhat normal. The first positive thing I noticed was my skin became more hydrated and no more skin eruptions.... Now after one year on Triumeq I love this medication and I feel ver close to normal. I have noticed that I have gained a little weight evenly on my body but that is a small price to pay for the way I feel today. If you can tolerate the inital side effects of this med you will be okay in time. My Viral Load is still undetectable and my T-count is 1,150 which is up from 900 . Read More Read Less

25-34

Male

HIV

10/31/2016

triumeq-oral

166,877

5

I started this drug 3 months ago after an HIV/AIDS diagnosis with a viral load of 1.1 million and a CD4 of 14. In the first month my viral load went to 150 and my CD4 went to 76. Getting my next blood results in a couple days, and hopefully both numbers are continuing to improve. Major side effects (severe bone aches) for the first 5 days, but then after that no side effects that I can notice. Worth powering through the side effects as they will subside and this medication is the best on the mar... ket. Read More Read Less

null

HIV

8/8/2016

triumeq-oral

166,877

1

Triumeq did not work out for me. I switched to it from a Truvada and Reltegravir combination. Within in days of starting Triumeq I experienced debilitating fatigue and I felt completely drained of energy from morning to night. My sleep was disturbed and I woke each day feeling exhausted before even getting out of bed. I lost my appetite and interest in food and had a constant dry mouth, when I did eat food I felt nauseous. I'm usually fit and active and a keen runner but after starting Triumeq I... would get out of breath just climbing stairs and I lost motivation to exercise. I stuck with them for 2 months but didn't see any improvement within that time. I've now changed back to my previous regimen and I feel back to normal and so much better. I know others who get on fine with Triumeq - you have got to try it for yourself and see how you body responds to it. Read More Read Less

45-54

Male

HIV

6/8/2016

triumeq-oral

166,877

5

Diagnosed with HIV in August 2015. I was given Truvada along with one other drug to bring down initial viral load. After six weeks we switched to Triumeq and my viral load has been undetectable (under 40) ever since. No side effects whatsoever.

null

HIV

5/19/2016

triumeq-oral

166,877

5

I was diagnosed on February 11th...viral load a month later in March was 606,000, CD4 count was 508. I started Triumeq on March 30th. I took another blood test on May 17th and received results 2 days later. Viral load is now 50..not 50,000...50!! CD4 count shot up to 900! My doctor was so thrilled that she had to call me even though my follow up appointment with her wasn't for another 2 weeks. This drug has been phenomenal for me! Virtually no side effects. I just take it every morning a... fter breakfast. Read More Read Less

55-64

Male

HIV

4/27/2016

triumeq-oral

166,877

1

Truimeq medication change was a disaster; started with incidents of strange sweating, crotch felt hot, difficulty falling asleep, some cramping in my legs above my knees that I had not experienced before. By the second week began to experience increased muscle cramps. I experienced muscle imbalances in my legs. I experienced joint aches of my hips, knees, ankles, wrists and hands. By third week Neuropathy pain signifcantly worse and I was walking kind of strange from the combination of pain, bur... ning and muscle imbalances in my legs. I was unable to walk or stand for more than 10 minutes without feet burning and hurting and having to sit down. Pain in my wrists and hands all joints and nerve pressure points was constant. I felt discomfort when I urinated in that the nerves in my prostrate and head of my penis felt over stimulated as I urinated. I discontinued Truimeq after 3 weeks and went back on Sustiva/Combivir. My neuropathy pain has become worse as a result of taking this medication. Read More Read Less

45-54

Male

HIV

11/11/2015

triumeq-oral

166,877

1

I am a long term survivor, and I have never had a complication from HIV or any HIV medication. I took the blood test to make sure I was not allergic, and I also did my homework and found many positive reviews. I was basically bedridden for 19 days, and stopped the medication. 2 days later, I ended up in the ER with pancreas complications. In my opinion, they marketed this drug too quickly, and there are too many unknowns about long term use. 1 pill a day is certainly easier, but I regret changin... g my original regimen. Read More Read Less

35-44

Male

HIV

10/21/2015

triumeq-oral

166,877

5

No side effects

55-64

Male

HIV

6/30/2015

triumeq-oral

166,877

5

As a 25-year survivor, I'm been on several regimens--this being the easiest (1 pill) and least side effects. Give it a try if the doc thinks you are a good candidate; be a positive thinker and hope it works.

null

HIV

3/3/2015

triumeq-oral

166,877

5

great meds

35-44

Male

HIV

12/4/2014

triumeq-oral

166,877

2.666667

5

2

1

Switched to Triumeq as part of the study switching from 3 pills to 1, and I got hit by all supposedly "infrequent" side effects and severely: severe mood swings, nausea, not feeling well, fatigue, low appetite, low sex drive, tarry stools, the list goes on. On top of that, 3 months into it, I now have anemia. My doctor did the test for potential allergic reaction to abacavir. The test came in good, that is, I am not allergic. The promise that I could take this new pill on an empty stomach was t... he main reason I joined the study, but that hasn't panned out. On empty stomach, this pill almost kills me - I get so sick & nauseous for 3 hours. So even though, this pill keeps me undetectable, it is not easy to use, as I have to take this pill only at night and I have to eat a full meal right before taking it. Needless to say, I am very dissatisfied and I am switching to something else. Read More Read Less

45-54

Male

HIV

1/4/2011

abacavir-lamivudine-zidovudine

20,131

5

I have used this treatment for about 2 weeks now and haven't had any symptoms come back. Thanks for making this 100% working treatment!

45-54

Male

HIV

3/27/2011

abacavir-lamivudine-oral

91,494

5

Initially, I took this drug/medication about two hours before bed, but found that it made me feel slightly quesy. Now I pop it before my shower and teeth clean before bed (15 minutes) and I am usually asleep before any effects kick in. I have spoken to my specialist about this and he says I have taken the correct course of action to alleviate my 'awake' symptoms.

25-34

Male

HIV

11/18/2010

abacavir-lamivudine-oral

91,494

5

this treatment has worked excelent for me and it is very easy to use just 1 pill before bed

35-44

Male

HIV

10/18/2009

abacavir-lamivudine-oral

91,494

1

since starting this medication had most of the side effects i would not recommend this drug .

35-44

Male

HIV

10/14/2008

abacavir-lamivudine-oral

91,494

4.666667

5

4

i am taking this medication as part of HIV therapy. i love it! it is so easy to take! it is one of three medications for me, and it is working so well. If you are to begin taking it, the side effects were not too bad for me. i had a "flu" for two days, some levels were adjusted, and not a single problem since. I will say, that I am always hot now. sleeping is a bit of a challenge, especially for my husband.

null

HIV

5/3/2008

abacavir-lamivudine-oral

91,494

5

I began Epzicom about a month ago (in conjunction with Kaletra) Frankly I was very uneasy about taking it since the side effects can be so daunting. Of course my doctor tested before I began it. I like just the one dose daily. I had some side effects for about a day (dry heaving) but those disappeared quickly. I think I will always have the deep itching and diarreah (Ii just cannot seem to spell that correctly)but I lost seven dear friends to HIV in the 80's and I am glad there are meds to s... ave my life. I am 74 years old and am not as strong as I formerly was but that could be age!!! Read More Read Less

55-64

Male

HIV

4/17/2008

abacavir-lamivudine-oral

91,494

4.666667

5

4

I've been using Epzicom since it was first made available, in conjuntion with Sustiva, and have had undetectable viral load, high CD4 counts and good CD4/CD8 ratio. The convenience of once daily dosing almost outweighs the outrageous, ever-increasing price.

25-34

Male

HIV

3/23/2008

abacavir-lamivudine-oral

91,494

3

2

5

2

started taking it two days ago and having some sideeffects and at the moment not not what to do

null

Rheumatoid Arthritis

6/3/2024

orencia-with-maltose-intravenous

94,819

4.666667

4

5

I have had several other brands and types of infusions, injections and auto injectors and a couple in daily tablet form. Orencia has. Even the most effective by far of any other and I have had over 10 years of satisfaction with it.

65-74

Male

Other

1/15/2024

orencia-with-maltose-intravenous

94,819

1.333333

2

1

During treatment I started to feel very weak and fatigued. After 3rd infusion I developed serious side effects and had to stop. I developed a kidney infection, my immune system crashed and I became very ill with right flank pain. Waiting for Orencia to finally wash out of my system.

45-54

Female

Rheumatoid Arthritis

1/4/2024

orencia-with-maltose-intravenous

94,819

2.666667

2

5

1

Since being on this medication I have had bronchitis twice, enlarged tonsils with snoring, facial nodules weekly post injection, UTI x2 and my back went out. I did not experience any hair loss or weight gain that I can attribute to this medication. My side effects was diarrhea day 1 after injection and fatigue.

65-74

Female

Rheumatoid Arthritis

8/3/2023

orencia-with-maltose-intravenous

94,819

5

I was diagnosed with RA when I was 28 yr old & prescribed aspirin & cortisone. I started Orencia IV infusions in 2005. It has been the best medicine. It stopped the joint degeneration. I have been in remission for 18 years. The cost has tripled in price since I've started it & may have to stop due to out-of-pocket expense becoming a burden.

55-64

Female

Rheumatoid Arthritis

10/9/2022

orencia-with-maltose-intravenous

94,819

1.666667

1

3

1

This medication nearly resulted in the death of my spouse because of severe side effects. She experienced severe fatigue, fever, and diarrhea before going to the emergency room. She was admitted and after multiple days of testing and consultation with many doctors, it was determined that Orencia triggered pneumonia and nearly fatal intestinal infection. She spent more than one week in the hospital and is on a slow road to recovery with no understanding of long-term effects. Please be mindful... as this occurred after her third injection. Read More Read Less

45-54

Female

Rheumatoid Arthritis

4/14/2022

orencia-with-maltose-intravenous

94,819

1

I did my first injection and started having an allergic reaction less than 5 minutes later. Facial flushing, severe dizziness, nausea, itching and swelling of the pallate, my evtire mouth went numb, shortness of breath. 2 rounds of Epi, 100mg of benedryl and 2 hours later I was able to stand. 24 hours later I had a milder reaction. Drug is still in my system so I’m keeping benedryl in me and an Epi pen close by.

null

Rheumatoid Arthritis

5/22/2020

orencia-with-maltose-intravenous

94,819

2.666667

3

2

Worked for a little while at first. After seven months. I feel it has failed me As a 6000 dollar price tag, it's not worth it. Need something ekse.

55-64

Female

Rheumatoid Arthritis

8/15/2019

orencia-with-maltose-intravenous

94,819

1

I have not used it yet!!

55-64

Female

Rheumatoid Arthritis

7/26/2019

orencia-with-maltose-intravenous

94,819

3.333333

3

4

3

At first after the 2 months I felt great then the 3rd month pain returned and have been loosing alot of hair and am not sure if it will come back. Wish they manufacturer would explain this as a side affect and how to treat it.

65-74

Female

Rheumatoid Arthritis

1/19/2019

orencia-with-maltose-intravenous

94,819

5

It took 3 months before it started working. According to their info, it can take up to 6 months to work. I had no problem using the Click-Jet injector. Once the medicine kicked in, I could move easily and without pain, and was able to cut down the pain meds.

45-54

Female

Rheumatoid Arthritis

4/16/2018

orencia-with-maltose-intravenous

94,819

5

I was diagnosed about 16 years ago and have tried at least 12 drugs. Nothing lasted very long until Orencia. I have been receiving infusion for about a year and I feel better than I have in years. This drug has helped me have a life again!

null

Chronic Joint Inflammatory Disease in Children and Young Adults of Unknown Cause

3/20/2018

orencia-with-maltose-intravenous

94,819

5

I have suffered with psoriatic arthritis for over 15 years bi used Enbrel until I got on Medicare then I could not afford that drug. I tried Remicaid for 10 months but was allergic to it bafter suffering for 3 years Orencia is working for me. I am so grateful. I am sorry for those still suffering. Try another infusion it may work.

null

Rheumatoid Arthritis

3/14/2018

orencia-with-maltose-intravenous

94,819

4

I have tried numerous Biologics and finally went on Orencia. Finally at the 7 mo mark it started to work, however my doc had just switched me to Acterma infusions. I was on the infusions for5 months and was having horrible night sweats and not sleeping, so switched back to Orencia. After about 2 months I was able to back off the methypred and no longer taking. I do have pain but it is better. I had no side affects to this med.

65-74

Female

Rheumatoid Arthritis

12/2/2017

orencia-with-maltose-intravenous

94,819

5

I have had a great response to this medication, and the staff who administers it is so good. They explain everything, and I am looking forward to it's continued use, as it has had such a profound effect on me.

null

Rheumatoid Arthritis

11/14/2017

orencia-with-maltose-intravenous

94,819

1

I think I've been on this for at least six months. Fuzzy thinking, tired, depressed, flu symptoms. Not sure it is helping. Will definitely ask for a new drug/new idea in December when I see my Rheumo Doc.

55-64

Female

Rheumatoid Arthritis

10/15/2017

orencia-with-maltose-intravenous

94,819

2

1

4

1

I had the worse experience with this Orencia medicine. I kept waiting for the six months that They said it takes to work. In the process, I got worse than ever . It not only didn't work but made me worse. I was so mad that I waited so long in vain. I will never try another medication that supposedly take that long to work.

55-64

Female

Other

7/15/2017

orencia-with-maltose-intravenous

94,819

3.666667

4

3

4

Monthly infusion worked well, however due to medical complications had to come off due to onset of cervical issues.

null

Rheumatoid Arthritis

6/10/2017

orencia-with-maltose-intravenous

94,819

1

I have been on Orencia (3 months) and Methotrexate (2 years). This past couple weeks I have felt horrible. Depressed, flu like symptoms, tired, sore throat and heavy breathing. I have been tring to figure out what is wrong. When I seen this page I felt better that I am not the only one. I am wondering how long this is going to last? Can't wait until Orencia is OUT of my systems!

null

Rheumatoid Arthritis

3/12/2017

orencia-with-maltose-intravenous

94,819

1

Started 2 months ago. First time blood pressure dropped dangerously low, felt terrible. Helped my joint swelling somewhat. Second time again felt terrible, pain in lower back, legs, nausea, diatthea, headache, went back to doctor, who said he thought I had fibromyalgia. Waiting to get in to g.p. Don't think I wat to take it anymore

19-24

Female

Rheumatoid Arthritis

1/13/2017

orencia-with-maltose-intravenous

94,819

3.666667

3

5

3

I have been on Orencia for roughly a year now- I have noticed an on going flu like symptom (stuffy nose, sore throat, etc.) and have noticed recently this drug has not been working as long as it has when I first started it. I take my injection on Saturdays- I have relief until Wednesday then my body flares up again. It is a good few month drug, this drug will eventually stop working for you.

null

Rheumatoid Arthritis

1/8/2017

orencia-with-maltose-intravenous

94,819

2

I've taken Orencia for about a year and a half.During this time, my hands and feet have continually worsened, and I also have hip pain, which I did n't have before. My back and knees remain about the same. I'm 57 and have had arthritis for about 20 years, so I'm not expecting miracles, but expected a better result, since I go to the gym 5 times a week to try to support my joints. I take plaquenil, methotrexate, prednisone,and meloxicam in addition to Orencia.

45-54

Female

Rheumatoid Arthritis

8/10/2016

orencia-with-maltose-intravenous

94,819

1

so far I still have pain

55-64

Female

Rheumatoid Arthritis

5/26/2016

orencia-with-maltose-intravenous

94,819

2

1

4

1

I received Orencia IV for seven months without any improvement in my RA symptoms.

45-54

Female

Rheumatoid Arthritis

1/14/2016

orencia-with-maltose-intravenous

94,819

4.666667

5

4

I like that it helps prevent flare ups but I don't like feeling sick alot

19-24

Female

Rheumatoid Arthritis

7/24/2015

orencia-with-maltose-intravenous

94,819

2.666667

2

4

2

I've been on Orencia for over a year now. It seemed to work well at first, but now the pain is getting worse and worse each day. This medication does not help with pain, unless combined with another medication (such as methotrexate) from what I've heard. The side effects of Orencia that I've noticed are: weight gain and trouble breathing (e.g., heavy breathing after walking up a few steps)...I am an active person. Please speak with your doctor to see what other drugs Orencia can be combined with... to increase its effectiveness. Read More Read Less

25-34

Female

Rheumatoid Arthritis

7/15/2015

orencia-with-maltose-intravenous

94,819

4.333333

4

5

4

Orencia took about 7 months to start working and I had to go off Humira for a month before so I was really struggling then one day BOOM! I felt amazing. My kankles turned to ankles and my overall health started to improve. I have not experienced any side effects (that I'm aware of as you may know having RA can make you less in tune with your body but nothing major)

45-54

Male

Rheumatoid Arthritis

7/6/2015

orencia-with-maltose-intravenous

94,819

4

Took Orencia IV for a little over a year and it worked good. Was diagnosed with bladder cancer 2 months ago and am waiting results of the biopsy after my treatment.I am not saying the treatments caused it but I typed in Orencia and Bladder Cancer and there is a small percent of people that have got Bladder cancer after taking the Orencia treatments.Plan on returning to Humira which was a little less effective than Orencia.

65-74

Female

Rheumatoid Arthritis

6/19/2015

orencia-with-maltose-intravenous

94,819

3.333333

3

4

3

Have been on Orencia since Oct 2014 and do not find it that effective. After having injection within 3-4 days I am hurting. Since starting this drug, I have lost 15-18 lbs which I am not happy about. Humira had worked great until I had bleeding from the bowels and my Dr. switched me to Oencia. She is going to add methotrexate to see if that will help boost the med. Actemra had also been good until it started to affect my blood work. Suppose next step will be onto another one. I don't think I'l... l try remicaid as my daughter had been taking it for her crohn's and ended up with drug enduced Lupis. Read More Read Less

55-64

Female

Rheumatoid Arthritis

5/14/2015

orencia-with-maltose-intravenous

94,819

3.333333

3

4

3

Large joints are better. Hands, feet not so much. Have gained about a pound a month on this drug even as I watch my diet. A cost of over 48,000 dollars a year seems excessive for the results

55-64

Female

Rheumatoid Arthritis

3/6/2015

orencia-with-maltose-intravenous

94,819

2.666667

2

5

1

BETTER THAN NOTHING, BUT NOT GREAT

45-54

Female

Rheumatoid Arthritis

12/14/2014

orencia-with-maltose-intravenous

94,819

4.333333

4

5

4

Have taken for over 3 years. It has been wonderful with no side effects at all. However, over the past six months it has gradually lost effectiveness. Most likely about to change since this is the only biologic in its class.

45-54

Female

Rheumatoid Arthritis

7/15/2014

orencia-with-maltose-intravenous

94,819

4.666667

5

4

I started weekly Orencia injections 3 months ago. After 6 weeks, I felt great with joint swelling and pain significantly reduced. Thought I may be going into remission. After 8 weeks of injections I experienced extreme fatigue which remains unabated. I sleep 8-9 hours every night and take 1 1/2 hour naps in the afternoons. My level of fatigue has worsened while taking Orencia but the joints feel good. Hoping to balance feeling decently energetic and relatively pain-free while on Orencia. ... Read More Read Less

55-64

Female

Rheumatoid Arthritis

7/6/2014

orencia-with-maltose-intravenous

94,819

1.666667

1

3

1

No one told me I needed two separate payment assistant cards (one for IV and one for self injections) so Orencia never paid Aetna Pharmacy for the copay portion. I have been dealing with thi bill for almost a year. I have only been given the run-around by staff of Orencia and Aetna Specialty Pharmacy. I tried Orencia through IV and self-injections in which both made my RA condition even worst. It's bad enough they are hounding me for the co-pay of $281 (I did pay the remaining balaance) bu... t it's hard to pay for a drug that made my RA worst. Read More Read Less

35-44

Female

Rheumatoid Arthritis

6/4/2014

orencia-with-maltose-intravenous

94,819

2.333333

1

5

1

I tried Orencia for the first time last Friday via self-inject and I have not felt well since. The day after the injection I was bed-ridden for 2 days unable to get up and move around. When I did, I was out of breath. I could not concentrate and even today, 5 days letter, my brain feels fuzzy. This is my 4th biological drug. I am 35 years old, diagnosed with RA in 1994. Humira worked well for 6 years then stopped, Enbrel for a year and Remicade not at all. All of these drugs give me severe fatig... ue for days after use. Seeing as Orenica is weekly, I cannot afford to be bedridden for days at a time each week. My doctor says that she has never heard of such reactions, so now I have to start something new altogether. I'm so tired of physicians telling us all that "they have never heard of (insert symptom) that reaction in other patients"- yet here we all are discussing various symptoms such as weight gain, depression, fatigue. I'm frustrated and at my wits end. My disease is severe and active, I've been off work almost 2 years, had joint replacement on my right shoulder and I'm terrified on my future with this disease. Anyone else experience extreme fatigue for days after treatments with biologics? Thank you for your reviews and feedback, makes me feel like I'm not the only one. I hope all of us find relief in the coming days. Kristy Read More Read Less

55-64

Male

Rheumatoid Arthritis

5/7/2014

orencia-with-maltose-intravenous

94,819

5

Works well.

55-64

Female

Rheumatoid Arthritis

2/11/2014

orencia-with-maltose-intravenous

94,819

2.666667

2

4

2

The only thing I can tell it may help sometime is the fatigue I feel. It hasn't slowed down my joint pain or swelling.

65-74

Female

Rheumatoid Arthritis

1/7/2014

orencia-with-maltose-intravenous

94,819

1

This medicine took my lungs. Very dangerious medicine. RA was bad enough but now I have no breath after walking a short distance. I can not lift things or exercise. Soon after it started, I told my doctor I could not bring my groceries inside to my kitchen without being short of breath. Finally he took me off and now I noticed a disclaimer about COPD on the side effects of the new packaging. Don't take this drug. My life will never by the same.

55-64

Female

Rheumatoid Arthritis

12/17/2013

orencia-with-maltose-intravenous

94,819

3

Have had RA for more than 20 years but since menopause it became much worse. Have used Enbrel and Humara Methotraxate etc. Methotraxate created liver issues and Enbrel worked well for more than 5 years. Orencia IV worked great for 2 years; the shots did not work. Now it is no longer working so we are going to a different drug hoping something else will work.

45-54

Female

Rheumatoid Arthritis

9/21/2013

orencia-with-maltose-intravenous

94,819

2.333333

1

5

1

The self managing syringe is less painful than the forceful pen injections. Icing the area prior to injecting made it easier. After the first injection, I came down with an upper respiratory infection where I could barely talk. After treating the infection, I restarted the injections and noticed week by week that I was gaining weight. I did experience an increase in head, face & jaw pain as well as an increase in fatigue, the sweats & an overall sick feeling. My lymph nodes were swelled up und... er my neck, behind my neck, under my jaw and in both armpits. They also were very painful and my overall joint & muscle pain increased quite a bit. My blood pressure was also very high, my throat was sore and my face was puffy. Some of my liver enzymes were high. My Rheumy believed it was just a side effect of the Prednisone and the Cymbalta but I decided to go to my PCP regarding swollen lymph nodes. Blood tests showed that I was positive for CMV Infection (Cytomegalovirus similar to Mononucleosis) which explains the swollen glands, sore throat, high blood pressure and hot sweats. It helps to have a sharp PCP looking at the bigger picture! I am still waiting for the results on the CT scan of the lymph nodes. I do have a history of Mono/Epstein-Barr virus and I have Fibromyalgia. By taking an immunity suppressant drug such as Orencia be aware that you run the risk of pickup any kind of bug from anyone regardless how careful you might be or activating an old acquaintances including Shingles. There is no medicine for CMV and recovery could take up to a year. Read More Read Less

55-64

Female

Rheumatoid Arthritis

9/19/2013

orencia-with-maltose-intravenous

94,819

4.333333

5

3

5

I have been battling with this for about 10 years now..this has been the best product I have used. I also don't like the weight gain..but it's nice to not be swollen and in pain all the time. I still have flair ups, but it's well worth it.

55-64

Female

Rheumatoid Arthritis

9/4/2013

orencia-with-maltose-intravenous

94,819

5

After having a serious rejection to Embrel my doctor switched me to Orencia. I was off meds for 8 weeks before starting so it took approx. 3 mos for Orencia to calm by condition. I love it. It's convenient except for the order by phone now and specialty pharmacies limit me to 1 box a month. Sometimes they do not get my medicine to me on time and I get 2-3 weeks behind (even with private insurance) What to do?

55-64

Male

Rheumatoid Arthritis

7/31/2013

orencia-with-maltose-intravenous

94,819

4

This miedication took approximtely 1 month until I felt full effect. I have been on 6 moths with minor side affects.

55-64

Female

Rheumatoid Arthritis

7/26/2013

orencia-with-maltose-intravenous

94,819

2.333333

3

2

I have had RA for 2 yrs now. On Orencia for a little over 12 mos. The weight gain is very distressing. I also have a terrible time with nausea and fatigue.

25-34

Female

Rheumatoid Arthritis

6/10/2013

orencia-with-maltose-intravenous

94,819

5

I was diagnosed with RA at 15 years old, I'm now 27, and my disease is very severe. I tried methotrexate and Enbrel and they were ineffective, Remicade worked okay for a couple years and then failed. I've been on Orencia for close to 7 years now and for me it is a miracle drug. I very rarely have any pain, stiffness or joint swelling. I now use the subcutaneous injections and they are just as effective as IV and much more convenient. I don't know what I would do if I did not have this drug.... With it, I am able to lead a normal active lifestyle. Read More Read Less

55-64

Female

Rheumatoid Arthritis

5/23/2013

orencia-with-maltose-intravenous

94,819

3.333333

3

4

3

I am 57 and have had RA since I was 21. Methx worked well for many years, but finally had to proceed on to Enbrel. LOVED Enbrel for 7 yrs., then on to Remicade. It didn't help at all; Rituxin was great for 3 yrs. but I had to make the decision to go up to 3 times per year instead of 2, and I just can't feel good about that, considering the dreadful possible side effects. Orencia is just ok....not a big difference in my condition, so I will talk to my dr. again to see what else is out there. ... Ugh, it's time for another giant step in RA treatment, don't you think? Read More Read Less

45-54

Female

Rheumatoid Arthritis

4/2/2013

orencia-with-maltose-intravenous

94,819

3

4

2

RA diagnosed 10 years ago. Tried most of the drugs. Orencia most effective, however, still get occasional flares. Main problem for me is getting multiple mouth sores within 24-48 hours after getting the IV. Very painful, very hard to treat and get rid of.

65-74

Female

Rheumatoid Arthritis

3/25/2013

orencia-with-maltose-intravenous

94,819

5

I have been on a combination of Orencia, mobic and prednisone for over two years. I had to discontinue the infusions because I got basal cell skin cancers on my face and arms. I did research and after taking pprednisone over five years about 60% of people will get basal cell skin cancer.I had surgeries so had to discontinue the infusions. Terrible to go off Orencia. I miss it so much. It helped me tremendously. I was able to cut way back on the other two drugs which cause stomach problems, catar... acts, high blood pressure and possibly diabetes. While taking Orencia I had much less fatigue and stiffness in joints. In fact joints felt stronger. Now get pains in arms, wrists, hands, feet. And kness feel like they might actually cave in. Twice I had bad reactions, migraine headache and dizziness. Now they give a 15 minute flush after the IV Orencia. They also start me off with 1000 mg of tylenol & two benadryl.That was the original procedure but the health care professionals didn't adhere to that original protocol. Most people didnt have reactions so of course why spend all that additional time and money for the additional procedure. Can't wait to go back on Orencia again. At times it was like I didn't even have RA. I am 70 years old and it has helped me commute to and hold down a full-time job in a big city. Also I am able to manuever thru an airport and get on a plane and take a few trips a year. I don't feel like I am old and done with. It gave me back my life. Read More Read Less

null

Rheumatoid Arthritis

3/20/2013

orencia-with-maltose-intravenous

94,819

3.666667

4

3

4

have dad some recations

45-54

Female

Rheumatoid Arthritis

1/17/2013

orencia-with-maltose-intravenous

94,819

3

4

1

This is a horrible drug, everytime I took it I landed up in the hospital with some kind of respiratory infection. I wish I had never taken this medication. Please do your research first. I did research, but only about its effectiveness. I want to be around for my sons kids-will never take this again,

null

Rheumatoid Arthritis

1/8/2013

orencia-with-maltose-intravenous

94,819

1

My daughter could not take Enbrel. It actually made her worse. Her joints would lock up and get very stiff if she took it. Now, Orencia is doing the same thing. Doctor wants to try one more time, but my daughter stays active and is afraid she won't be able to play basketball for the rest of the season, because now her wrists and shoulders are locking up and feel like they are broken and can't move. Her bottom lip swells each time, and she always has itching. Doctor knows all this, but can someth... ing that makes her worse turn around and make her better? Need advice... Read More Read Less

35-44

Female

Rheumatoid Arthritis

12/24/2012

orencia-with-maltose-intravenous

94,819

4

5

2

I have been on Orencia for 3 years and it has helped the RA symptoms greatly. My energy level is much better than it was before. My only complaint is that I have gone from 115 pounds to 135 pounds in those 3 years. I am a very small woman and I find this weight gain very upsetting. I am exercising more and eating less, but my weight continues to climb. My doctor refuses to believe the Orencia is causing this gain, but I see by other reviews, I'm not the only one. My doc told me I can go back on... methotrexate or try another biological. I'm not sure what to do?! Read More Read Less

55-64

Male

Rheumatoid Arthritis

12/10/2012

orencia-with-maltose-intravenous

94,819

1.333333

1

2

1

have`t seen any difference

45-54

Female

Rheumatoid Arthritis

12/2/2012

orencia-with-maltose-intravenous

94,819

1.333333

1

2

1

Wrote first review on 8/25/12 (right before 4th dose)and nothing has changed.......this drug for me has been awful and dangerous and I will not take it again! Tried to give it time, but during latest dose (my 6th), my blood pressure shot up and I felt like I was having a stroke. Could not get rid of headache with tylenol and ibuprofen. Had to stay and be monitored for extra hour until it returned to normanl. Next day, knee swelled to twice it's size and stayed that way for 3 days. I felt fi... ne prior to receiving my infusion and like I was on death's door halfway thru. Enough! I know the inflammation is dangerous, but I just can't play guinea pig anymore. I am done trying these new meds! Good bye Orencia! I have had adverse reactions to too many of these "man made" chemicals to last a thousand life times, including a bout with Steven's Johnson's. Serious note: one never knows if meds will work unless they are tried. I am just tired right now of trying new ones and the consequences or side effects of them. If they work for any of you, be grateful and I am truly happy for you. I believe we should listen to our bodies as we know them best and ultimately do what one feels is best for them at that given time. Read More Read Less

65-74

Female

Rheumatoid Arthritis

11/3/2012

orencia-with-maltose-intravenous

94,819

2

3

1

2

Have had to reschedule IV twice because of infections. Been on Orencia for 10 mo. After each infusion my DEPRESSION gets worse. I am going to have to stop the med even tho it helps with swelling and pain. "Choose your poison."

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