The Rare Disease Foundation is focused on linking basic science and clinical practice to increase the efficiency of rare disease research.
The website offers support for patients and their families. It also provides a forum for rare disease community to share cross-disease information and social support.
CORD in the Canada's national network for representing people living with rare diseases. Although the website is dedicated mostly to professionals working with rare disorders it also provides information that may be of interest to patients and their families. It lists links to organizations, publications and presentations on various aspects of rare disorders.