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International Observatory on End of Life Care
DNs_observation_care_in_moment_care_in_future_AAM_11.12.19
Rights statement: This document is the Accepted Manuscript version of a Published Work that appeared in final form in British Journal of Community Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://www.magonlinelibrary.com/doi/abs/10.12968/bjcn.2020.25.6.276.
https://www.magonlinelibrary.com/doi/abs/10.12968/bjcn.2020.25.6.276
https://doi.org/10.12968/bjcn.2020.25.6.276
Aims, actions and advance care planning by district nurses providing palliative care: an ethnographic observational study
Catherine Walshe
British Journal of Community Nursing
District nurses are core providers of palliative care, yet little is known about the way that they provide care to people at home. This study aimed to investigate the role and practice of the district nurse in palliative care provision. This was an ethnographic study, with non-participant observation of district nurse-palliative care patient encounters, and post-observation interviews. District nurse teams from three geographical areas in northwest England participated. Data were analysed iteratively, facilitated by the use of NVivo, using techniques of constant comparison. Some 17 encounters were observed, with 23 post-observation interviews (11 with district nurses, 12 with patients/carers). Core themes were 'planning for the future' and 'caring in the moment'. District nurses described how they provided and planned future care, but observations showed that this care focused on physical symptom management. District nurses engaged in friendly relationship building, which allows detailed management of symptomatology, but with little evidence of advance care planning.
This document is the Accepted Manuscript version of a Published Work that appeared in final form in British Journal of Community Nursing, copyright © MA Healthcare, after peer review and technical editing by the publisher. To access the final edited and published work see https://www.magonlinelibrary.com/doi/abs/10.12968/bjcn.2020.25.6.276.