End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey
Kayo Hirooka, Hiroyuki Otani, Tatsuya Morita, Tomofumi Miura, Hiroki Fukahori, Maho Aoyama, Yoshiyuki Kizawa, Yasuo Shima, Satoru Tsuneto, Mitsunori Miyashita
医学系研究科・保健学専攻
Objectives: The purpose of this study was (a) to describe the end-of-life experience of family caregivers of cancer patients, (b) to describe talking about death and dying of the patient to minor children, and (c) to examine the association of family caregivers' experiences by their characteristics and talking about death and dying of the patient. Methods: A cross-sectional nationwide survey of bereaved family caregivers was conducted. In total, 968 questionnaires were sent to bereaved family caregivers, and 711 were completed and returned. Fifty-three responses indicating patients had minor children were analyzed. Univariate analysis and principal component analysis were performed. Results: Family caregivers' experiences were divided into 3 domains by principal component analysis: protect children from the patient's imminent death, little regard for the children, and worry and concern about the children's emotional reaction. Family caregivers' common experiences were as follows: "I wanted to know how the children felt," "I wanted to avoid making the children confused," and "I did not have much time to talk with and/or play with the children." About 30% of family caregivers reported that they "did not talk" about death and dying of patients to minor children. Spouses of patients and family caregivers who did not talk about death tended to experience distress and worry. Conclusions: Most family caregivers experienced worry and fear regarding minor children's emotional reaction; therefore, clinicians need to explain children's emotional and psychological reactions to family caregivers when a patient is at the end-of-life.
Psycho-Oncology
https://doi.org/10.1002/pon.4504
実験心理学および認知心理学
精神医学および精神衛生
UN SDG
この成果は、次の持続可能な開発目標に貢献しています
10.1002/pon.4504
「End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey」の研究トピックを掘り下げます。これらがまとまってユニークなフィンガープリントを構成します。
Child Medicine and Dentistry 100%
Caregiver Medicine and Dentistry 100%
Family Nursing and Health Professions 100%
Patient Nursing and Health Professions 72%
Death Nursing and Health Professions 22%
Experience Medicine and Dentistry 18%
Patient Worry Medicine and Dentistry 13%
Hirooka, K., Otani, H., Morita, T., Miura, T., Fukahori, H., Aoyama, M., Kizawa, Y., Shima, Y., Tsuneto, S., & Miyashita, M. (2018). End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey. Psycho-Oncology, 27(1), 272-278. https://doi.org/10.1002/pon.4504
End-of-life experiences of family caregivers of deceased patients with cancer : A nation-wide survey. / Hirooka, Kayo; Otani, Hiroyuki; Morita, Tatsuya その他.
In: Psycho-Oncology, Vol. 27, No. 1, 01.2018, p. 272-278.
Hirooka, K, Otani, H, Morita, T, Miura, T, Fukahori, H, Aoyama, M, Kizawa, Y, Shima, Y, Tsuneto, S & Miyashita, M 2018, 'End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey', Psycho-Oncology, vol. 27, no. 1, pp. 272-278. https://doi.org/10.1002/pon.4504
Hirooka K, Otani H, Morita T, Miura T, Fukahori H, Aoyama M その他. End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey. Psycho-Oncology. 2018 1月;27(1):272-278. doi: 10.1002/pon.4504
Hirooka, Kayo ; Otani, Hiroyuki ; Morita, Tatsuya その他. / End-of-life experiences of family caregivers of deceased patients with cancer : A nation-wide survey. In: Psycho-Oncology. 2018 ; Vol. 27, No. 1. pp. 272-278.
@article{b296d78f70a94255affb2283ea36b23d,
title = "End-of-life experiences of family caregivers of deceased patients with cancer: A nation-wide survey",
abstract = "Objectives: The purpose of this study was (a) to describe the end-of-life experience of family caregivers of cancer patients, (b) to describe talking about death and dying of the patient to minor children, and (c) to examine the association of family caregivers' experiences by their characteristics and talking about death and dying of the patient. Methods: A cross-sectional nationwide survey of bereaved family caregivers was conducted. In total, 968 questionnaires were sent to bereaved family caregivers, and 711 were completed and returned. Fifty-three responses indicating patients had minor children were analyzed. Univariate analysis and principal component analysis were performed. Results: Family caregivers' experiences were divided into 3 domains by principal component analysis: protect children from the patient's imminent death, little regard for the children, and worry and concern about the children's emotional reaction. Family caregivers' common experiences were as follows: "I wanted to know how the children felt," "I wanted to avoid making the children confused," and "I did not have much time to talk with and/or play with the children." About 30% of family caregivers reported that they "did not talk" about death and dying of patients to minor children. Spouses of patients and family caregivers who did not talk about death tended to experience distress and worry. Conclusions: Most family caregivers experienced worry and fear regarding minor children's emotional reaction; therefore, clinicians need to explain children's emotional and psychological reactions to family caregivers when a patient is at the end-of-life.",
keywords = "J-HOPE3, bereavement, cancer, children, family caregiver, grief, nation-wide survey, oncology, palliative care, support",
author = "Kayo Hirooka and Hiroyuki Otani and Tatsuya Morita and Tomofumi Miura and Hiroki Fukahori and Maho Aoyama and Yoshiyuki Kizawa and Yasuo Shima and Satoru Tsuneto and Mitsunori Miyashita",
note = "Funding Information: This study was part of the J‐HOPE3 Study. This study was performed in cooperation with Hospice Palliative Care Japan and funded by the Japan Hospice Palliative Care Foundation. Publisher Copyright: Copyright {\textcopyright} 2017 John Wiley & Sons, Ltd.",
doi = "10.1002/pon.4504",
journal = "Psycho-Oncology",
publisher = "John Wiley and Sons Ltd",
T1 - End-of-life experiences of family caregivers of deceased patients with cancer
T2 - A nation-wide survey
AU - Hirooka, Kayo
AU - Otani, Hiroyuki
AU - Morita, Tatsuya
AU - Miura, Tomofumi
AU - Fukahori, Hiroki
AU - Aoyama, Maho
AU - Kizawa, Yoshiyuki
AU - Shima, Yasuo
AU - Tsuneto, Satoru
AU - Miyashita, Mitsunori
N1 - Funding Information: This study was part of the J‐HOPE3 Study. This study was performed in cooperation with Hospice Palliative Care Japan and funded by the Japan Hospice Palliative Care Foundation. Publisher Copyright: Copyright © 2017 John Wiley & Sons, Ltd.
N2 - Objectives: The purpose of this study was (a) to describe the end-of-life experience of family caregivers of cancer patients, (b) to describe talking about death and dying of the patient to minor children, and (c) to examine the association of family caregivers' experiences by their characteristics and talking about death and dying of the patient. Methods: A cross-sectional nationwide survey of bereaved family caregivers was conducted. In total, 968 questionnaires were sent to bereaved family caregivers, and 711 were completed and returned. Fifty-three responses indicating patients had minor children were analyzed. Univariate analysis and principal component analysis were performed. Results: Family caregivers' experiences were divided into 3 domains by principal component analysis: protect children from the patient's imminent death, little regard for the children, and worry and concern about the children's emotional reaction. Family caregivers' common experiences were as follows: "I wanted to know how the children felt," "I wanted to avoid making the children confused," and "I did not have much time to talk with and/or play with the children." About 30% of family caregivers reported that they "did not talk" about death and dying of patients to minor children. Spouses of patients and family caregivers who did not talk about death tended to experience distress and worry. Conclusions: Most family caregivers experienced worry and fear regarding minor children's emotional reaction; therefore, clinicians need to explain children's emotional and psychological reactions to family caregivers when a patient is at the end-of-life.
AB - Objectives: The purpose of this study was (a) to describe the end-of-life experience of family caregivers of cancer patients, (b) to describe talking about death and dying of the patient to minor children, and (c) to examine the association of family caregivers' experiences by their characteristics and talking about death and dying of the patient. Methods: A cross-sectional nationwide survey of bereaved family caregivers was conducted. In total, 968 questionnaires were sent to bereaved family caregivers, and 711 were completed and returned. Fifty-three responses indicating patients had minor children were analyzed. Univariate analysis and principal component analysis were performed. Results: Family caregivers' experiences were divided into 3 domains by principal component analysis: protect children from the patient's imminent death, little regard for the children, and worry and concern about the children's emotional reaction. Family caregivers' common experiences were as follows: "I wanted to know how the children felt," "I wanted to avoid making the children confused," and "I did not have much time to talk with and/or play with the children." About 30% of family caregivers reported that they "did not talk" about death and dying of patients to minor children. Spouses of patients and family caregivers who did not talk about death tended to experience distress and worry. Conclusions: Most family caregivers experienced worry and fear regarding minor children's emotional reaction; therefore, clinicians need to explain children's emotional and psychological reactions to family caregivers when a patient is at the end-of-life.
KW - J-HOPE3
KW - bereavement
KW - cancer
KW - family caregiver
KW - grief
KW - nation-wide survey
KW - oncology
KW - palliative care
KW - support
U2 - 10.1002/pon.4504
DO - 10.1002/pon.4504
JO - Psycho-Oncology
JF - Psycho-Oncology