Revolutionary Treatment for deadliest child cancer
A project by: Maisie Hamilton
pledged of £220,000 target
This project did not reach its target.
Completion Date: Tue 01 Mar 2016
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No child in the world has survived a DIPG Brain Tumour. We are close to a cure. Please help us.
**With our previous campaign and Offline donations from our Amazing fundraisers we now have over £680,000 of the £900,000 we need - Thank you**
A child who is diagnosed with a DIPG (Diffuse Intrinsic Pontine Glioma) brain tumour has only a few months to live. It's a race against time to find a cure to stop this deadly condition.
No child in the world has survived this. With Professor Steven Gill and his team we hope that we will never have to say that again.
We are close to finding a cure, please help us to fund a clinical trial.
Using the revolutionary CED technology developed by Professor Gill (Convection Enhanced Delivery system) the team are able to infuse drugs directly into the brain - to date this is the biggest problem in treating all neurological conditions, the blood-brain barrier.
Figure above: Unique CED catheter system comprises implantable micro-catheters and a skull anchored port which allows drugs to be repeatedly administered without the need for further surgery.
We know, with the help of brave Daisy Brooks, diagnosed with DIPG aged 6, that the system of delivering drugs directly into the tumour works.
(read more of Daisy's story at www.fundingneuro.com).
We know David's* tumour has reduced by 90% after just 3 rounds of infusions.
All of these treatments have been carried out experimentally and have shown signs that we are closer than ever before to finding a cure.
We know that there are a combination of drugs in the laboratory that if infused via the system could result in a cure!
We know that there are a number of children needing this treatment for any chance of survival, and that the only way this can be done is through a clinical trial.
Please help Funding Neuro to fund this trial and give these children that chance.
Together we can make a difference and beat the deadly DIPG.
*Names have been changed
- Twitter @FundingNeuro
- http://fundingneuro.com/
- Remember to tell people to "Follow us to find out how we're doing!"
Help us succeed!
- You don't need to give money to help us succeed. Please share this project with anyone you think would support us – on Twitter, Facebook, LinkedIn, by email, telephone, in a chat over the fence or on your blog.
- In fact, please share it with everyone you know as we need the world to know about this treatment.
- And we know we said you don't need to give money to help us, but we'd love it if you did!
Please donate if you can and help bring us closer to saving the lives of children like Daisy.
Project Creator:
Maisie Hamilton
Choose Reward:
Pledge £1 or more
Select this reward if you just want to donate to the project without receiving a reward.
Feel Great Factor: feel great knowing you have contributed help fight DIPG and find a cure for this devastating condition.
Pledge £10 or more
Message of Thanks: for your £10 contribution you will receive a personal email of thanks from the team
Message in a Test Tube! We will send you a certificate which acknowledges you for your personal donation to the trial, in a trial branded test tube. Please add £10 for shipping outside of the UK.
Surprise FN Goody Bag: for your £25 contribution you will receive a goody bag full of surprises, which will include running top, pin badges and other goodies. Please add £5 for shipping outside of the UK.
View the Launch Lecture Online: for your £30 contribution you will receive an invitation to watch the streamed Launch Lecture of the project. This is a wonderful opportunity to hear Professor Steven Gill talk about the research and delve deeper into the details.
Excl Tshirt and online lecture: we will send you an exclusive FN Research DIPG Clinical Trial T-shirt and an invitation to view the streamed launch lecture on-line. This T-shirt will allow you to proudly display your support for the project. Please add £10 for shipping outside of the UK.
Pledge £100 or more
Come to the launch lecture: for your £100 contribution you will be invited to come and hear the Launch Lecture by Professor Steven Gill in Bristol. This is your opportunity to learn about the research first hand and ask any questions you may have. Pledgers will have to make their own way to Bristol (date tbc)
Personal thank you DVD & T-shirt: you will receive a thank you postcard, an exclusive FN Research Project T-shirt and a DVD with a personal message of thanks for from the team. Please add £10 for shipping outside of the UK.
Pledge £1000 or more
Acknowledgement at Lecture: for your contribution of £1,000 you will be invited to and publicly acknowledged at the launch lecture as part of the trial.
Lunch with the 3 wise men! You and a friend will have the one off opportunity to dine with the brains behind the research. Not only will this include a delicious meal, but it will also be the perfect opportunity to ask anything!
Day in the life of a scientist: for your £2,500 contribution you will be invited on a tour of Professor Gill's lab at University of Bristol, South Mead Hospital! You will get an insight into the fight against neurological conditions first hand. Please note, you will have to make your own way to Bristol.
Acknowledged in publication: For your contribution of £5,000, you will have the honour of being exclusively acknowledged in the published paper for the trial by the research team. This is a fantastic way to tie your name to the research forever!
Pledge £900000 or more
Naming rights to the trial: The (could it be you?) DIPG Clinical Trial…………. The Clinical Trial will be named after you and you will go down in the history books as the person that funded Professor Gill and his team's trial to find a cure for DIPG.
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